1. over 8 years ago
    Brenda_Ann's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Was taking Thalidomide, an oral chemo. along with a steriod.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Gilpzie
    • Experience with Multiple Myeloma
    over 8 years ago
    Gilpzie's Avatar

    Diagnosed

    Oh No

    After 8 months and 9 hospitalizations, a diagnosis today. They tried to send her home again 1 week ago without diagnosis, after a di...

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    1 Comment
  2. over 8 years ago
    Lthompson's Avatar

    Revlimid and dexamethizone currently doing trial

    Clinical Trial

    I still have side affects from the velcade ie; neuropathy , also velcade side affects have made it so I couldn't get additional chem...

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    0 Comments
  3. over 8 years ago
    Lthompson's Avatar

    Heart problems/heart damage

    Side Effects

    Velcade caused many many side affects and caused my heart attack

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    0 Comments
  4. over 8 years ago
    Lthompson's Avatar

    Procedure or Surgery

    Bone Marrow Transplant

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. over 8 years ago
    Grandpa_Ray's Avatar

    Put on Maintenance Mode

    Celebration

    My numbers have been in the "normal" range now for several months, which means my cancer has shrunk. Since I am experiencing some n...

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    1 Comment
  6. over 8 years ago
    Lthompson's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Revlimid, dexamethizone , and Zometa

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. over 8 years ago
    Lthompson's Avatar

    Diagnosed

    Oh No

    Originally diagnosed with MGUS that shortly turned into Multiple Myeloma

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    0 Comments
  8. almost 9 years ago
    MyelomaTeacher's Avatar

    Bone thinning (osteoporosis)

    Side Effects

    I was diagnosed with oestiopenia prior to my diagnosis. The bone strengthening drugs have helped this tremendously

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    0 Comments
  9. almost 9 years ago
    MyelomaTeacher's Avatar

    Bone fracture or break

    Side Effects

    I had several compression fractures prior to my diagnosis

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    0 Comments
  10. almost 9 years ago
    MyelomaTeacher's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I used Thalidomide as consolidation therapy until I started to develop PN. So my therapy was switched to Velcade, Revlimid, Dex whi...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  11. almost 9 years ago
    MyelomaTeacher's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    I used Zometa as a bone strengthening bisphosphonate. I continue to use it but have spread out the treatment cycles.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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