• jazz
    • Experience with Brain and Spinal Cord Tum...
    about 7 years ago
    jazz's Avatar

    Surgery

    Procedure or Surgery

    Extremely painful; Son vowed not to have another surgery to remove regrowth. However, faced with the return of the tumor similar in...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • jazz
    • Experience with Brain and Spinal Cord Tum...
    about 7 years ago
    jazz's Avatar

    Oh No

    Son had MRI because mother/wife died with a GBM. MRI revealed Grade II astrocytoma. Very fortunate he decided to check to see if s...

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    0 Comments
    • Willard801
    • Experience with Low-grade Astrocytoma
    about 7 years ago
    Willard801's Avatar

    Misdiagnosed

    Oh No

    Wife was misdiagnosed May 2006 with MS after MRI that was requested by a pain clinic for issues she was having with circulation in h...

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    0 Comments
  1. over 7 years ago
    Jenjenvaldez's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    They say if you have to have chemotherapy this is the way to go. I don't think there is any good form of chemo to take. Temador is a...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Sister111
    • Experience with Brain and Spinal Cor...
    over 7 years ago
    Sister111's Avatar

    Diagnosed

    Oh No

    Well my sister started having symptoms on 12/9/2012 and after a bit of coersion on my brother, Louis's, behalf since he lives with h...

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    1 Comment
    • misha41510
    • Experience with High-Grade Astrocyt...
    over 7 years ago
    misha41510's Avatar

    After Party

    Celebration

    Just as my mom asked for, we through her an "After Party" about a month after she passed away. It was a joyous celebration of her li...

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    1 Comment
    • misha41510
    • Experience with High-Grade Astrocyt...
    over 7 years ago
    misha41510's Avatar

    Lost loved one

    Loss

    My mom passed away on July 29, 2012. You can read about my experience in my blog at http://cominghometocancer.blogspot.com/

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    0 Comments
  2. over 7 years ago
    angeleyes75's Avatar

    Tumor has grown

    Oh No

    Dr said Bill's tumor has grown a lil so we are at a "wait and see" point. MRI's every 3-6 months to keep a watch on it.

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    0 Comments
    • mauvehawk
    • Experience with Brain and Spinal Cor...
    over 7 years ago
    mauvehawk's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    He is starting chemo on New Years Eve a combination of Cisplatin and Irinotecan once a week for 5 and half hours, for the next 6 weeks.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • l1barb
    • Experience with Brain and Spinal Cord T...
    over 7 years ago
    l1barb's Avatar

    Side Effects

    steroidal face swelling, dizzy, weak, shakes

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    0 Comments
    • Emmy
    • Experience with Brain and Spinal Cord Tum...
    over 7 years ago
    Emmy's Avatar

    Finished treatment

    Celebration

    Finished radiation but 4 more rounds of chemo to go in january

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    0 Comments
    • Emmy
    • Experience with Brain and Spinal Cord Tum...
    over 7 years ago
    Emmy's Avatar

    External radiation

    Radiation

    25 Rounds of whole brain radiation. Finished dec 24 hair loss. Burned skin nausea

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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