• Hippo
    • Experience with Medulloblastoma
    over 8 years ago
    Hippo's Avatar

    Relationship issues

    Oh No

    When I was diagnosed I was heart broken, I still am. I didn't want to tell anyone but my husband because I didn't and don't want to ...

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    0 Comments
    • Hippo
    • Experience with Medulloblastoma
    over 8 years ago
    Hippo's Avatar

    MRI/CAT scans to be done

    Procedure or Surgery

    This week or next I am having testing done to see how I'm progressing. That's good I suppose. Especially since I just want to be fi...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Boombeen
    • Experience with Brain and Spinal Cord...
    over 8 years ago
  1. over 8 years ago
    msfullofhope's Avatar

    Status of MRI and MGMT gene

    Celebration

    I just returned from my doctor and he said that the news is good. He said there is no evidence of the tumor and that the "cavity" wh...

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    0 Comments
  2. over 8 years ago
    msfullofhope's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Over the past three months, I have been on the 5 day (per month) temador regiment. I finish the third round tonight (1/13/13). I hav...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Willard801
    • Experience with Low-grade Astrocytoma
    over 8 years ago
    Willard801's Avatar

    Surgery

    Procedure or Surgery

    Misdiagnosed, diagnosed, Laid off from her job (so no health insurance), and surgery all within 3 weeks.

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Willard801
    • Experience with Low-grade Astrocytoma
    over 8 years ago
    Willard801's Avatar

    Diagnosed

    Oh No

    After a second look the pain clinic found a brain tumor, and before we left the Dr office they had her an appointment with the cance...

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    0 Comments
  3. over 8 years ago
    Rwillard801's Avatar

    Diagnosed

    Oh No

    Well I had 1 and 3 year old. It's was the worse thing I could have been diagnosed with. I had only been married for only 3 years. Wh...

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    0 Comments
    • jazz
    • Experience with Brain and Spinal Cord Tum...
    over 8 years ago
    jazz's Avatar

    Surgery

    Procedure or Surgery

    Extremely painful; Son vowed not to have another surgery to remove regrowth. However, faced with the return of the tumor similar in...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • jazz
    • Experience with Brain and Spinal Cord Tum...
    over 8 years ago
    jazz's Avatar

    Oh No

    Son had MRI because mother/wife died with a GBM. MRI revealed Grade II astrocytoma. Very fortunate he decided to check to see if s...

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    0 Comments
    • Willard801
    • Experience with Low-grade Astrocytoma
    over 8 years ago
    Willard801's Avatar

    Misdiagnosed

    Oh No

    Wife was misdiagnosed May 2006 with MS after MRI that was requested by a pain clinic for issues she was having with circulation in h...

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    0 Comments
  4. over 8 years ago
    Jenjenvaldez's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    They say if you have to have chemotherapy this is the way to go. I don't think there is any good form of chemo to take. Temador is a...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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