• Reg
    • Experience with Acute Lymphocytic Leukemia...
    about 9 years ago
    Reg's Avatar

    Diagnosed

    Oh No

    I was 20 yrs. old and a single mother . My son was 8 months old when I was initially diagnosed.

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    • KLStone
    • Experience with AML with Multilineage ...
    about 9 years ago
    KLStone's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    oral chemotherapy: thalidomide & Revlimid injected chemo: Dacogen (decitabine) - low dose protocol

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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    • KLStone
    • Experience with AML with Multilineage ...
    about 9 years ago
    KLStone's Avatar

    Diagnosed

    Oh No

    Myelodysplastic Syndrome (MDS) diagnosed 2004 following routine physical exam, slightly low platelets and WBC. It was a SHOCK, M...

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  1. about 9 years ago
    JoLoaretti's Avatar

    loss of my independence, and my ability to act as if I have it all handled, I needed HELP

    Loss

    do not feel alone, reach out, and some one will catch you, this is a hard battle and You can do it alone but it will be an easier jo...

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    • WhyWhat
    • Experience with APL (M3), which Usuall...
    about 9 years ago
    WhyWhat's Avatar

    Cancer is back/Recurred

    Oh No

    got a positive PCR blood test 6 mos. into Phase 3 (Maintenance); have a bone marrow biopsy scheduled to reconfirm (if positive, is c...

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    0 Comments
    • WhyWhat
    • Experience with APL (M3), which Usuall...
    about 9 years ago
    WhyWhat's Avatar

    Getting Out of Hospital

    Celebration

    Getting out of the hospital after 2 mos. was a major celebration. I was so happy I cried when I got the news I could leave!

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    0 Comments
    • WhyWhat
    • Experience with APL (M3), which Usuall...
    about 9 years ago
    WhyWhat's Avatar

    Nausea/Vomiting

    Side Effects

    multiple side effects: nausea, vomiting, low white counts, low red counts (anemia), chemo brain, mouth sores, hair loss, nails dest...

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    0 Comments
    • WhyWhat
    • Experience with APL (M3), which Usuall...
    about 9 years ago
    WhyWhat's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    in hospital for Phase 1 (induction) and in bed at home for Phase 2 (consolidation), Phase 3 (maintenance) is oral chemo and tolerate...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • WhyWhat
    • Experience with APL (M3), which Usuall...
    about 9 years ago
    WhyWhat's Avatar

    Diagnosed

    Oh No

    in shock

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  2. about 9 years ago
    MilindaKaye's Avatar

    Remission

    Celebration

    This summer I celeberated by 5th year in remission. It took me 5 years to get over alot of emotional things, but now i'm attending...

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    • pjmartin5
    • Experience with Acute Lymphocytic Le...
    about 9 years ago
    pjmartin5's Avatar

    Finished treatment

    Celebration

    November 28th, 2008! I was finally done!

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    • pjmartin5
    • Experience with Acute Lymphocytic Le...
    about 9 years ago
    pjmartin5's Avatar

    Lost loved one

    Loss

    My close friend Kevin lost his battle a few months after I finished treatment.

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    0 Comments
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