1. almost 9 years ago
    MyelomaTeacher's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My induction therapy included the drugs Revlimid and the steroid dexamethasome.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. almost 9 years ago
    Paul-a-Sir-5-4's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Dexemethisone and subcutaneous Velcade got me to complete remission. Steroid side effects make me groggy or wide awake and sleepless.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. almost 9 years ago
    Paul-a-Sir-5-4's Avatar

    Multiple clinical trials

    Clinical Trial

    While they each initially worked (first couple of treatments) I got bumped out of each one when the myeloma came back strong.

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    0 Comments
  4. almost 9 years ago
    Paul-a-Sir-5-4's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had a huge reaction during third IV Vekcade cycle

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. almost 9 years ago
    Paul-a-Sir-5-4's Avatar

    Diagnosed

    Oh No

    "You have a myeloma" so how do I make lemonade from this?

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    0 Comments
    • geskoi
    • Experience with Multiple Myeloma
    almost 9 years ago
    geskoi's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    DVD - doxorubicin, vincristine, dexamethasone M-spike went from 6.1 to low enough for an autologous stem cell transplant.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • MsJay
    • Experience with Multiple Myeloma
    almost 9 years ago
    MsJay's Avatar

    Decision Point

    Had to decide whether to deliver baby early to start chemo. or wait to at least 37 weeks gestation. Decided to wait

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    0 Comments
    • MsJay
    • Experience with Multiple Myeloma
    almost 9 years ago
    MsJay's Avatar

    Side Effects

    Some feelings of nausea during first few weeks of treatment. Little hair loss around hairline. Some thinning but not noticeable to ...

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    0 Comments
    • MsJay
    • Experience with Multiple Myeloma
    almost 9 years ago
    MsJay's Avatar

    Hospitalization

    Other Care

    In car accident at 5 months pregnant. Caused back problems which led to hospitalization at 8 months preg. At this time seeing hemat...

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    0 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    almost 9 years ago
    Charlieb's Avatar

    Levels came back up

    Celebration

    Transplant has worked and is now grafting in my system. Still waiting for a good day as the only thing to go away was the mouth sor...

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    1 Comment
    • Charlieb
    • Experience with Multiple Myeloma
    almost 9 years ago
    Charlieb's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    They had already marked on my calendar, the 6th and 7th would be my worst days. That would be when all my levels drop to 0 (technic...

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    0 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    almost 9 years ago
    Charlieb's Avatar

    Bone Marrow Transplant

    Procedure or Surgery

    So now June 1st 2012 has become my new birthday. On Thursday May 31st they gave me 3 million stem cells out of the 6 million collec...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
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