1. about 8 years ago
    MaryEllen's Avatar

    External radiation

    Radiation

    as my radiation was upper body, I had great difficulty swallowing for about 10 days

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. about 8 years ago
    MaryEllen's Avatar

    Surgery

    Procedure or Surgery

    On medical leave from my job

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. about 8 years ago
    Grandpa_Ray's Avatar

    Cancer is shrinking

    Celebration

    Test results continue to show we are beating my cancer's butt. Latest test number is 13.8. Well below the normal "high" of 26. Fo...

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    4 Comments
    • Rick
    • Experience with Multiple Myeloma
    about 8 years ago
    Rick's Avatar

    Diagnosed

    Oh No

    My wife has cancer

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    0 Comments
    • Cat
    • Experience with Multiple Myeloma
    over 8 years ago
    Cat's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Waiting to start zometa. Had teeth work done, that broke the bank! I'm still doing research don't understand to much about it yet. A...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Cat
    • Experience with Multiple Myeloma
    over 8 years ago
    Cat's Avatar

    Radiation

    Just finished 4weeks of radiation to femur. Had little side effects stomach felt funny, took probiotics that worked. Skin got a litt...

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Cat
    • Experience with Multiple Myeloma
    over 8 years ago
    Cat's Avatar

    Surgery

    Procedure or Surgery

    Had groin pain found in X-ray 2in. Of femur gone. Went to Standford did surgery next day. They in lay terms scooped out bad area. Pu...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. over 8 years ago
    Grandpa_Ray's Avatar

    Cancer is shrinking

    Celebration

    Latest test results are that my bad proteins are in the normal range (17). This will allow me to slide my next chemo round so I can...

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    1 Comment
  5. over 8 years ago
    Grandpa_Ray's Avatar

    Cancer is shrinking

    Celebration

    After 12 doses of Melphalan and 4 doses of Velcade, my Lambda Light Chains have been reduced from 250 to 170 (normal is <26!). That...

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    1 Comment
    • MIZZPAT
    • Experience with Multiple Myeloma
    over 8 years ago
    MIZZPAT's Avatar

    Decision Point

    At 100+ days after her stem cell transplant, we are facing a decision on chemo maintenance vs just monitoring and waiting. Chemo mai...

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    0 Comments
    • MIZZPAT
    • Experience with Multiple Myeloma
    over 8 years ago
    MIZZPAT's Avatar

    stem cell transplant

    Procedure or Surgery

    Had autologus stem cell transplant (using own stem cells - no donor) on 10/21/2011. Stem cell harvesting was laborious but had few ...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    over 8 years ago
    Charlieb's Avatar

    Cancer is shrinking

    Celebration

    After just two rounds of treatment, my protein levels are in the normal range! My doctor is very happy with my response to chemo.

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    2 Comments
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