• Warren
    • Experience with Multiple Myeloma
    over 8 years ago
    Warren's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    After radiation treatments in hospital, when released, went on high dose steroid and Revlimid.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Warren
    • Experience with Multiple Myeloma
    over 8 years ago
    Warren's Avatar

    Other

    Procedure or Surgery

    Had MRI, cancer discovered, put in hospital next day. Blood work, bone marrow biopsy, spent three weeks in hospital, while receivi...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Warren
    • Experience with Multiple Myeloma
    over 8 years ago
    Warren's Avatar

    Diagnosed

    Oh No

    PCP missed symptoms, consequently delayed treatment If anyone has a 'gut' feeling that the symptoms are not 'just back related', ...

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    1 Comment
  1. over 8 years ago
    DavidEmerson's Avatar

    exercise, nutrition, supplementation, hyperthermia

    Other Care

    Multiple myeloma is an incurable cancer meaning survivors always relapse. Always. Knowing this, when I achieved complete remission ...

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    0 Comments
  2. over 8 years ago
    DavidEmerson's Avatar

    Decision Point

    An appointment with my oncologist on September 27th 1997 became a turning point for me. My onc told me that "nothing more can be do...

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    1 Comment
  3. over 8 years ago
    DavidEmerson's Avatar

    External radiation

    Radiation

    I underwent local radiation to my neck soon after my diagnosis 2/94 and again upon my second relapse in 10/96. The second local rad...

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. over 8 years ago
    DavidEmerson's Avatar

    cataracts, irritable bladder, chemobrain, lumbo-sacral plexopathy, chemotherapy-induced peripheral neuropathy, heart damage (atrial fibrillation)

    Side Effects

    The side effects listed- cataracts, irritable bladder, chemobrain, lumbo-sacral plexopathy, chemotherapy-induced peripheral neuropat...

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    0 Comments
  5. over 8 years ago
    DavidEmerson's Avatar

    Diagnosed

    Oh No

    Several months of neck pain turned our to be a single plasmacytoma in C5 diagnosed 2/94. Initial surgery included removing the plas...

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    0 Comments
  6. over 8 years ago
    frantic2008's Avatar

    Depression/Anxiety

    Side Effects

    Atropy in my hands and feet. Lost all my hair when I had the stem cell transplant.

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    0 Comments
  7. over 8 years ago
    frantic2008's Avatar

    Surgery

    Procedure or Surgery

    Stem Cell Treatment done June 2010.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. over 8 years ago
    Grandpa_Ray's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started first round of Velcade (Bortezomid) yesterday after 3 rounds of Melphalan last quarter. Fortunately, the Dexamethosone is 1...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. over 8 years ago
    Grandpa_Ray's Avatar

    Celebration

    Talked with a doctor from the Oregon Health Sciences University last month. He gave me a totally different diagnosis and prognosis ...

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    0 Comments
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