• mom24
    • Experience with Brain and Spinal Cord Tu...
    over 8 years ago
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    External radiation

    Radiation

    31 treatments of IMRT radiation, radiation is done currently; side effects include stomach upset, redness of skin on back, sore throat

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • mom24
    • Experience with Brain and Spinal Cord Tu...
    over 8 years ago
    mom24's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    three drugs...cytoxan, vincristine, cisplatin on different days with Neulasta shot intermittently, just started three weeks ago, nau...

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • mom24
    • Experience with Brain and Spinal Cord Tu...
    over 8 years ago
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    Diagnosed

    Oh No

    Medulloblastoma

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    0 Comments
    • Alicedwyer
    • Experience with Brain and Spinal Co...
    almost 9 years ago
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    Oh No

    No signs before my seizure

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    0 Comments
    • Tylerbeam
    • Experience with Brain and Spinal Cor...
    almost 9 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    BCNU CCNU Temodar

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Tylerbeam
    • Experience with Brain and Spinal Cor...
    almost 9 years ago
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    External radiation

    Radiation

    33 Rounds in 2003

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Tylerbeam
    • Experience with Brain and Spinal Cor...
    almost 9 years ago
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    Other

    Procedure or Surgery

    Surgery in '99, '03 and '08

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • jREINHARDT
    • Experience with High-Grade Astrocyt...
    almost 9 years ago
    jREINHARDT's Avatar

    30 Days since last seizure

    Celebration

    It has been 30 days since my last seizure and cross my fingers/ knock on wood/ and any other superstisous thing you can think of, my...

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    1 Comment
    • mauvehawk
    • Experience with Brain and Spinal Cor...
    almost 9 years ago
    mauvehawk's Avatar

    Diagnosed

    Oh No

    Monday after Thanksgiving, they found a brain tumor, which originated from the esophagus. They took the brain tumor out. Esophagus...

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    0 Comments
    • Becky30
    • Experience with Intermediate-Grade Ast...
    almost 9 years ago
    Becky30's Avatar

    Surgery

    Procedure or Surgery

    He underwent craniotomy on 11/19 to remove the bulk of the tumor. They initially thought was that the mass was only inflammation, an...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Becky30
    • Experience with Intermediate-Grade Ast...
    almost 9 years ago
    Becky30's Avatar

    Diagnosed

    Oh No

    I am a surgical resident at the hospital where my husband was getting his MRI. I strongly suspected a tumor, since he was having wor...

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    0 Comments
  1. almost 9 years ago
    Hunter1021's Avatar

    External radiation

    Radiation

    Just started radiation...so far so good no side effects yet.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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