• moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 6 years ago
    moxie's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    We are both getting acupuncture 1 to 2 times per week and have found this to be extremely helpful for stress, fatigue, and insomnia....

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    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 6 years ago
    moxie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Spouse is patient. getting Gemzar + Cisplatin intravenously..2 treatments 1 week apart followed by 1 week off for total of 9 weeks. ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • JohnR2
    • Experience with Bile Duct (Cholangiocar...
    over 6 years ago
    JohnR2's Avatar

    Surgery

    Procedure or Surgery

    Whipple Procedure Surgery conducted mid April 2013, also known as a Pancreaticoduodenectomy, following ERCP's conducted in January, ...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • jrusty1961
    • Experience with Bile Duct (Cholangi...
    over 6 years ago
    jrusty1961's Avatar

    Cancer has spread/Metastasized

    Oh No

    First my daughters cancer was found to be a mass, then it turned into a tumor and this was before surgery, then 3 weeks after the in...

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    • rjkbishop
    • Experience with Distal (Extrahepatic...
    over 6 years ago
    rjkbishop's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Underwent first treatment with no side effects as of yet. Next treatment in 2 days.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • rjkbishop
    • Experience with Distal (Extrahepatic...
    over 6 years ago
    rjkbishop's Avatar

    Procedure or Surgery

    The port was installed as an outpatient procedure with minimal discomfort

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • txnurse61
    • Experience with Intrahepatic, Bile D...
    over 6 years ago
    txnurse61's Avatar

    Psychosocial

    Other Care

    This is very hard for the whole family, it is difficult to know what he and his wife are experiencing, and exactly what they are bei...

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    • txnurse61
    • Experience with Intrahepatic, Bile D...
    over 6 years ago
    txnurse61's Avatar

    Diagnosis

    Oh No

    Hearing he has cancer was so shocking

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    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 6 years ago
    moxie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The MRS started chemo last Thursday, tomorrow, 3/28, will be #2. GEMZAR and Cisplatin. plus anti nausea med ZOFRAN, and was prescrib...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • BK3
    • Experience with Bile Duct (Cholangiocarcin...
    over 6 years ago
    BK3's Avatar

    Fatigue (tiredness)

    Side Effects

    Nausea, appetite loss, taste change, weight loss, sadness

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    0 Comments
    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 6 years ago
    moxie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Saw Dr Andrew Zhu at Mass General Hosp Boston. Spouse, Rosy, has a PET scan scheduled for tomorrow. They have scheduled her to start...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    over 6 years ago
    RLM's Avatar

    Decision Point

    Dr. Told me two weeks ago that the chemo I was currently on was all he had to offer. We decided to increase the dosage. Wrong move. ...

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    0 Comments
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