• Bellamore
    • Experience with Intrahepatic, Bile D...
    about 7 years ago
    Bellamore's Avatar

    short term bile drainage stent

    Procedure or Surgery

    I feel this is just the beginning of a long process. It's not an uncommon surgery with this type of cancer, but it's not a sure thin...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    about 7 years ago
    RLM's Avatar

    no more help can be given. bile duct cancer spread to the lungs. all chemo types have been tried.

    Oh No

    Went to Duke University Medical Center for clinical trial. There for nine weeks. No help. Dr. Advised me to seek hospice help whic...

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    0 Comments
    • ShannonB
    • Experience with Intrahepatic, Bile Du...
    about 7 years ago
    ShannonB's Avatar

    Birthday

    Celebration

    Spent a week at a resort with all my immediate family and their extended families. Got to celebrate my niece's 11th birthday.

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    0 Comments
    • ShannonB
    • Experience with Intrahepatic, Bile Du...
    about 7 years ago
    ShannonB's Avatar

    Hospitalization

    Other Care

    Found a mass in my liver when I went into the ER with abdominal pain. Stayed in the hospital for ten days and left with a cancer dia...

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    0 Comments
    • ShannonB
    • Experience with Intrahepatic, Bile Du...
    about 7 years ago
    ShannonB's Avatar

    Decided not to do chemo

    Decision Point

    Haven't signed up for hospice yet. I still look and feel pretty good all things considered.

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    0 Comments
    • Tomtucson
    • Experience with Bile Duct (Cholangio...
    about 7 years ago
    Tomtucson's Avatar

    5 years out Vegas baby

    Celebration

    Family threw me an awesome party at the Flamingo.

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    0 Comments
    • Tomtucson
    • Experience with Bile Duct (Cholangio...
    about 7 years ago
    Tomtucson's Avatar

    Surgery

    Procedure or Surgery

    Stage 111 Cholangiocarcinoma survivor spread to the liver, was treated with major surgery,(got99Percent) Radiation, oral Chemo. Turn...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • Marsha
    • Experience with Bile Duct (Cholangiocar...
    about 7 years ago
    Marsha's Avatar

    Cancer has spread/Metastasized

    Oh No

    When I was told I had Stage IV bile duct cancer with a tumor on my liver which was inoperable and my cancer was not curable

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    0 Comments
    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    about 7 years ago
    moxie's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    We are both getting acupuncture 1 to 2 times per week and have found this to be extremely helpful for stress, fatigue, and insomnia....

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    0 Comments
    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    about 7 years ago
    moxie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Spouse is patient. getting Gemzar + Cisplatin intravenously..2 treatments 1 week apart followed by 1 week off for total of 9 weeks. ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • JohnR2
    • Experience with Bile Duct (Cholangiocar...
    about 7 years ago
    JohnR2's Avatar

    Surgery

    Procedure or Surgery

    Whipple Procedure Surgery conducted mid April 2013, also known as a Pancreaticoduodenectomy, following ERCP's conducted in January, ...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • jrusty1961
    • Experience with Bile Duct (Cholangi...
    about 7 years ago
    jrusty1961's Avatar

    Cancer has spread/Metastasized

    Oh No

    First my daughters cancer was found to be a mass, then it turned into a tumor and this was before surgery, then 3 weeks after the in...

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    0 Comments
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