• Rose121
    • Experience with AML with Maturation (M2)
    over 2 years ago
    Rose121's Avatar

    Oh No

    [email redacted] that my hangouts message me on it

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    0 Comments
    • MiaMag
    • Experience with Acute Myeloid Leukemia ...
    over 2 years ago
    • MiaMag
    • Experience with Acute Myeloid Leukemia ...
    over 2 years ago
    MiaMag's Avatar

    Hospitalization

    Other Care

    About a month after transplant and discharge, I developed Sepsis. I had been receiving home care and it was thought that it occurred...

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    • MiaMag
    • Experience with Acute Myeloid Leukemia ...
    over 2 years ago
    MiaMag's Avatar

    An AML stem cell transplant drug trial

    Clinical Trial

    I was accepted into the trial because one doc stood up for me. I was too old at 61 and there was fear that I would die and wreck the...

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    • MiaMag
    • Experience with Acute Myeloid Leukemia ...
    over 2 years ago
    MiaMag's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Without my chemo I doubt I would have made it. I was lucky to have been accepted into a clinical trial at UCLA and had a kick-XXX doc.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • MiaMag
    • Experience with Acute Myeloid Leukemia ...
    over 2 years ago
    MiaMag's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I was premeditated through IV and was told to sign the authorization form when I was barely able to see. I had no idea I had brain s...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • cantcope
    • Experience with Chronic Lymphocytic L...
    over 2 years ago
    cantcope's Avatar

    Allergic reaction

    Side Effects

    Doctor put me on Imbruvica Sept. 2017. I didn't have too many problems the first month but it hit me like a ton of bricks on the 2nd...

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    2 Comments
    • kenbre
    • Experience with Slow Growing, Chronic L...
    over 2 years ago
    kenbre's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My husband was blessed to not lose any hair and had minimal side effects. Chemotherapy was administered from April 2015 until Septem...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • ddrewry86
    • Experience with Chronic Myeloid Leuk...
    over 2 years ago
    ddrewry86's Avatar

    Birth

    Celebration

    I successfully went off of Sprycel therapy and had a child while risking my leukemia coming back and it did. We put me back on my me...

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    • ddrewry86
    • Experience with Chronic Myeloid Leuk...
    over 2 years ago
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    Pain

    Side Effects

    Bone pain from Sprycel that will sometimes debilitate me

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    0 Comments
    • ddrewry86
    • Experience with Chronic Myeloid Leuk...
    over 2 years ago
    ddrewry86's Avatar

    Swelling (edema)

    Side Effects

    This also ties in with weight gain. I am always retaining water

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    • ddrewry86
    • Experience with Chronic Myeloid Leuk...
    over 2 years ago
    ddrewry86's Avatar

    Nausea/Vomiting

    Side Effects

    Nausea from time to time

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    0 Comments
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