1. almost 6 years ago
    Leewren616's Avatar

    August 2009 went back to work

    Celebration

    He was released by the doctor to return to work, he was glad to be back and I was happy to see him happy

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    0 Comments
  2. almost 6 years ago
    Leewren616's Avatar

    Surgery

    Procedure or Surgery

    6 weeks to the day of his last surgery he had another surgery done on his left kidney, larger in size, already out of its encapsulat...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. almost 6 years ago
    Leewren616's Avatar

    Surgery

    Procedure or Surgery

    He woke up after surgery, in not to much pain, but had a pain pump in him for 4 days. 6 weeks recovery time.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. almost 6 years ago
    Leewren616's Avatar

    Cancer has spread/Metastasized

    Oh No

    this started as blood in his urine, now it is in both kidneys, March 2009, he thinks he is not going to live through this. He had ne...

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    0 Comments
  5. almost 6 years ago
    survivorkathy's Avatar

    External radiation

    Radiation

    I have swelling, it's hard to chew. I found out my jaw is broke almost through. I believe it might be due to the bone strenghting dr...

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  6. almost 6 years ago
    survivorkathy's Avatar

    afinitor, exemestane, xgeva

    Drug or Chemo Therapy

    I was first diagnosed with breast cancer in 2003. 4 years later it metastised in my skull. It is now in my jaw. Receiving radiation....

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Aschoenf
    • Experience with Chondrosarcoma, Bone ...
    almost 6 years ago
    Aschoenf's Avatar

    Surgery

    Procedure or Surgery

    I had a lamenectomy on 1/2/13 to remove a cyst from my spine. I then had a two part major hemisacrectomy and VRAM flap to remove the...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  7. almost 6 years ago
    Smcclaine25's Avatar

    Surgery

    Procedure or Surgery

    Chest Wall resection and reconstruction. Included the removal of a portion of 4 ribs.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • danirn18
    • Experience with Chordoma, Bone Cancer
    almost 6 years ago
    danirn18's Avatar

    Anniversary

    Celebration

    My daughter, Alyson, was diagnosed with Chordoma in June 2011. She has had three brain surgeries and 8 weeks of radiation. She is, a...

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    0 Comments
  8. about 6 years ago
    CopingWithBigC's Avatar

    Follow up hospital appointments & appointments for secondary effects from cancer treatment.

    Other Care

    I'm 4 years in part remission from osteosarcoma (bone cancer).

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    0 Comments
    • Daisysmay
    • Experience with Chondrosarcoma, Bone...
    about 6 years ago
    Daisysmay's Avatar

    PAIN

    Symptom Management

    Trust me--you don't want to go here.

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    0 Comments
    • cathieb
    • Experience with Bone Cancer
    about 6 years ago
    cathieb's Avatar

    Pain medicine

    Drug or Chemo Therapy

    Once my pain started to increase the doctor put me on a narcotics patch, which made me a little dizzy at first but my body adjusted ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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