• Twinnys8
    • Experience with Multiple Myeloma
    over 1 year ago
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    Weight gain

    Side Effects

    I don’t get any side effects to any of the medications I take but I have gained all my weight back and gain at least 2 lbs a week

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    0 Comments
    • Twinnys8
    • Experience with Multiple Myeloma
    over 1 year ago
    Twinnys8's Avatar

    Other

    Clinical Trial

    Haven’t done a clinical trial

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    0 Comments
    • mmang
    • Experience with Multiple Myeloma
    over 1 year ago
    mmang's Avatar

    Internal radiation

    Radiation

    Had to go every day for 10 treatments. Not so bad, but I was in awful pain from spasms. the Radiation was painless.

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Twinnys8
    • Experience with Multiple Myeloma
    over 1 year ago
    Twinnys8's Avatar

    Radiation

    I don’t receive radiation

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Twinnys8
    • Experience with Multiple Myeloma
    over 1 year ago
    Twinnys8's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I don’t get side effects with the velcade or Revilimid or dex

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • mmang
    • Experience with Multiple Myeloma
    over 1 year ago
    mmang's Avatar

    Surgery

    Procedure or Surgery

    Very painful surgery. Had to go to rehab facility for 3 weeks. The pain was unbearable at times, but doable with pain meds.

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Twinnys8
    • Experience with Multiple Myeloma
    over 1 year ago
    Twinnys8's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I got a port for antibiotics not for chemo.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • mmang
    • Experience with Multiple Myeloma
    over 1 year ago
    mmang's Avatar

    Oh No

    I was rushed to ER with severe back pain. Diagnosed tumor on T12. Has immediate surgery. Very shocked to learn it was cancer.

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    1 Comment
    • Twinnys8
    • Experience with Multiple Myeloma
    over 1 year ago
    Twinnys8's Avatar

    Heart valve needs replacing

    Oh No

    I had endocarditis when I was diagnosed with multiple myeloma and my aorta valve is leaking and while on chemo I can’t have surgery.

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    0 Comments
  1. over 1 year ago
    GeorgeSmiley's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I got into a hospital with ammonia poisoning. They started treating it as a regular poisoning, but my conditions were getting worse ...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Jwoof
    • Experience with Multiple Myeloma
    almost 2 years ago
    Jwoof's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Since 2012, I've been on several different chemo drugs. I have a defective gene 13, which has caused serious side effects and requi...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. almost 2 years ago
    Myelomamama's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Velcade, Revlimid and dex.. Not bad at first the fifth and sixth cyles were really tough, insomnia. Lucky not to have had severe...

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    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
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