1. about 1 year ago
    Myelomamama's Avatar

    Radiation

    Because of back pain, extremely painfully getting on and off the treatment table

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    Painless Experience: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • usedtobe
    • Experience with Multiple Myeloma
    about 1 year ago
    usedtobe's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Diagnosed with Multiple Myeloma November, 2017. Initially 'smoldering', but free light chain test confirmed 'active MM'. Started c...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Janet54
    • Experience with Multiple Myeloma
    about 1 year ago
    Janet54's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I experienced slight nausea. Very fatigued

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Momg
    • Experience with Multiple Myeloma
    about 1 year ago
    Momg's Avatar

    Remission

    Celebration

    I am in remission, but I truly feel bad at least 15 days out of the month.i will have good days but not consistent.

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    1 Comment
    • Momg
    • Experience with Multiple Myeloma
    about 1 year ago
    Momg's Avatar

    External radiation

    Radiation

    I was able to finish radiation, but had to do chemo as radiation did not do it’s job

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    Painless Experience: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Momg
    • Experience with Multiple Myeloma
    about 1 year ago
    Momg's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had many side effects, deminita tendonitiis both ankles horrible neuropathy. Unable to take maintenance chemo nor zometa.

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Somratni
    • Experience with Multiple Myeloma
    about 1 year ago
    Somratni's Avatar

    Just Diagnosed

    Oh No

    My husband died suddenly in January and just when I thought I would be OK on my own I get this diagnosis. I dread having to face th...

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    1 Comment
    • ElaineM
    • Experience with Multiple Myeloma
    about 1 year ago
    ElaineM's Avatar

    Hospitalization

    Other Care

    In November I had an auto stem cell transplant. Three weeks in the hospital followed by 3 months of building strength. Received co...

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    1 Comment
    • ElaineM
    • Experience with Multiple Myeloma
    about 1 year ago
    ElaineM's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Thalidamide worked well, but it caused peripheral neuropathy. It was given with high dose dexamethasone (40 mg a day for 4 days, 4 ...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • ElaineM
    • Experience with Multiple Myeloma
    about 1 year ago
    ElaineM's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    I used the 3 hour infusion time to relax. Occasionally I had to grade papers, but usually it was a time to read and nap. Loved tha...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • ElaineM
    • Experience with Multiple Myeloma
    about 1 year ago
    ElaineM's Avatar

    Just Diagnosed

    Oh No

    Went to internist with another minor problem. The blood test he did showed high protein and, thanks to God, he knew to follow up wi...

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    0 Comments
    • Jenno2
    • Experience with Multiple Myeloma
    about 1 year ago
    Jenno2's Avatar

    Clinical Trial

    I was DX in 2011 with multiple myeloma stage 3 . I am high risk including -17p deletion. I participate in clinical trials. Even if ...

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    0 Comments
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