• Cookie48
    • Experience with Mantle Cell Lymphoma
    about 3 years ago
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    Side Effects

    large weight gain---neuropathy feet but no pain-spinal pain-neckbase like headache with balance problem- sciatica-kidney pain-consti...

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    • Cookie48
    • Experience with Mantle Cell Lymphoma
    about 3 years ago
    Cookie48's Avatar

    Allergic reaction

    Side Effects

    I finally managed to get thru neulasta shot with help of claritin but the little patch/pump was excrutiating unbelievable pain!!!nev...

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    • Cookie48
    • Experience with Mantle Cell Lymphoma
    about 3 years ago
    Cookie48's Avatar

    Problem with doctor

    Oh No

    My thyroid levels got way off-tsh was 69 when normal less than 4--so dr changes me from synthroid to natural but only 60 mg to repla...

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    • Cookie48
    • Experience with Mantle Cell Lymphoma
    about 3 years ago
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    Acupuncture

    Other Care

    because fluid retention is high due to my problems with steroids and hydronephrosis plus lymphdema of arms and leg-doing acupuncture...

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  1. about 3 years ago
    chrismarler4's Avatar

    Quarterly blood tests.

    Other Care

    Current stage zero. Only being monitored by frequent blood tests.

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    • MarciaLynn
    • Experience with Diffuse Large B-Cel...
    about 3 years ago
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    Great PET scan results!

    Celebration

    PET Scan in Feb. 2018 after completion of chemo showed previous lymphoma tumors were gone.

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    • kicks
    • Experience with Follicular Lymphoma
    about 3 years ago
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    Just Diagnosed

    Oh No

    I was shocked about my diagnoses. The docs moved very quick with tests, getting the port in and scheduling chemo.

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    • kicks
    • Experience with Follicular Lymphoma
    about 3 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    I find it hard to believe no pain meds are given for recovery--even just a day's worth. Tylenol just took the edge off the pain. I...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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    • kicks
    • Experience with Follicular Lymphoma
    about 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Chemo begins on Aug 6th!

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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    • Kal
    • Experience with Mantle Cell Lymphoma
    about 3 years ago
    Kal's Avatar

    When to start treatment.

    Decision Point

    Diagnosed August 2017. Likely I had MCL for a couple of years prior. First treatment February 15, 2019. B/R for 4-6 months. If I...

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    • Debech
    • Experience with Mantle Cell Lymphoma
    about 3 years ago
    Debech's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My husband just completed his 1st round of chemo-Bendeka and immunotherapy-Rituxan. He was really tired after yesterday, took 6 hrs....

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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    • SueRose
    • Experience with Nodal Marginal Zone B-...
    about 3 years ago
    SueRose's Avatar

    The gym

    Other Care

    After a year of working I am finally able to get back to the gym. It has taken this long for my muscle pain to go down and be able t...

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