1. about 3 years ago
    MaribelRamos' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Temodar 120mg for 42 consecutive days. Maintainance treatment 360 mg for 5 days per month

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. about 3 years ago
    KiVier2011's Avatar

    Cancer is back/Recurred

    Oh No

    The tumor has quadrupled in size since April 2016, and since it is at the top of his spine, it is compressing his spinal cord and ca...

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    0 Comments
  3. about 3 years ago
    KiVier2011's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Sunitnib as experimental treatment, did not work and severe impact on health. December 2015-February 2016

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. about 3 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    Muscle graft to make final repair of pseudomeningiocele. Found infection in CSF, catheter inserted to be able to treat with antibiot...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. about 3 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    Another pseudomeningiocele repair

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. about 3 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    August 2015 Shunt put in to correct hydrocephalus caused by May surgery

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. about 3 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    June 2015 pseudomeningiocele repair from May surgery

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. about 3 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    May 5, 2015

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  9. about 3 years ago
    KiVier2011's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Avastin, hoping it will buy him some time. July 2016-?

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Suzy-q
    • Experience with Brain and Spinal Cord T...
    about 3 years ago
    Suzy-q's Avatar

    scar tissue?

    Side Effects

    Seems I now have "something else" showing up on my MRI Started with December's MRI, which was bumped up from February, because of a ...

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    0 Comments
    • dhtdiver
    • Experience with Brain and Spinal Cord...
    over 3 years ago
    dhtdiver's Avatar

    Anniversary

    Celebration

    Just got the results of mt Semi-Annual Brain Scan MRI following up on the CNS Lymphoma brain tumor from Oct 2009...all clear, stable...

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    1 Comment
    • RissaRooXx
    • Experience with Intermediate-Grade ...
    over 3 years ago
    RissaRooXx's Avatar

    Seizures

    Side Effects

    New diagnosis of post radiation epilepsy

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    0 Comments
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