• jkm55rn
    • Experience with High-Grade Astrocytoma...
    almost 4 years ago
    jkm55rn's Avatar

    Health insurance issue

    Oh No

    It took 10 days to figure out which insurance would pay for the Temodar.

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    0 Comments
  1. almost 4 years ago
    DisneyGirl's Avatar

    Anniversary

    Celebration

    I just celebrated my 6 year cancer anniversary without any tumor growth on June 28, 2016! YEAH ME!!!!!!!!

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    0 Comments
  2. almost 4 years ago
    DisneyGirl's Avatar

    High blood pressure (hypertension)

    Side Effects

    The Avastin raised my blood pressure but it is now under control with medication.

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    0 Comments
  3. almost 4 years ago
    DisneyGirl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was on Temador for a year along with Avastin 2 times a month for the first 2 years. For my third year I did Avastin 1 time a mont...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. almost 4 years ago
    MaribelRamos' Avatar

    Moving to the US

    Decision Point

    Since I have a dangerous tumor, I am seeeking help int he US with my kids in order to continue treatment and a better prognostic of ...

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  5. almost 4 years ago
    MaribelRamos' Avatar

    Surgery

    Procedure or Surgery

    april 11, 2016 removed a tumor size of a orange.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. almost 4 years ago
    MaribelRamos' Avatar

    External radiation

    Radiation

    35 treatments of radiation.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  7. almost 4 years ago
    MaribelRamos' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Temodar 120mg for 42 consecutive days. Maintainance treatment 360 mg for 5 days per month

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. almost 4 years ago
    KiVier2011's Avatar

    Cancer is back/Recurred

    Oh No

    The tumor has quadrupled in size since April 2016, and since it is at the top of his spine, it is compressing his spinal cord and ca...

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    0 Comments
  9. almost 4 years ago
    KiVier2011's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Sunitnib as experimental treatment, did not work and severe impact on health. December 2015-February 2016

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  10. almost 4 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    Muscle graft to make final repair of pseudomeningiocele. Found infection in CSF, catheter inserted to be able to treat with antibiot...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  11. almost 4 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    Another pseudomeningiocele repair

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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