• DeBuhr1943
    • Experience with Fallopian Tube Cancer
    over 8 years ago
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    Medication for Neuropathyy

    Symptom Management

    Med Gabapentin (Neurotin) is being used for my feet. I know Lyrica is considered the best med for non-narcotic nerve pain in feet. ...

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    • DeBuhr1943
    • Experience with Fallopian Tube Cancer
    over 8 years ago
    DeBuhr1943's Avatar

    Home care

    Other Care

    I have had Home Health Care staff seeing me for one year. I have an aide working for me 5 days a week. She makes my life simpler. ...

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    • Vjp2012
    • Experience with Fallopian Tube Cancer
    over 8 years ago
    Vjp2012's Avatar

    Genetic results

    Oh No

    Oh no! I am BRCA1 positive. New decisions to make.

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    1 Comment
    • Vjp2012
    • Experience with Fallopian Tube Cancer
    over 8 years ago
    Vjp2012's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Too soon to know if chemotherapy is easy to do, has minimal side effects and how it impacts daily life.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    2 Comments
    • Vjp2012
    • Experience with Fallopian Tube Cancer
    over 8 years ago
    Vjp2012's Avatar

    Other

    Clinical Trial

    Hopeful! Just started, 1st treatment was 2/27/2013.

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    1 Comment
    • Vjp2012
    • Experience with Fallopian Tube Cancer
    almost 9 years ago
    Vjp2012's Avatar

    Laparoscopic hysterectomy

    Procedure or Surgery

    Surgery was long but went well. 2 days later I had to have a nasal gastric tube- yuck!!

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Vjp2012
    • Experience with Fallopian Tube Cancer
    almost 9 years ago
    Vjp2012's Avatar

    Diagnosed

    Oh No

    I am not pregnant, I have a rather large tumor on my ovary!! Surgery is scheduled right away.

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    0 Comments
    • chrisrdh
    • Experience with Fallopian Tube Cancer
    almost 9 years ago
    chrisrdh's Avatar

    Remission

    Celebration

    after receiving 18 infusions of taxol and cistplatin iv and ip i am now in remission per my cats scan and ca 125. only problem i h...

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    0 Comments
    • Bgracki
    • Experience with Fallopian Tube Cancer
    about 9 years ago
    Bgracki's Avatar

    Chemo brain

    Side Effects

    It is fact of treatment but does lessen with time.

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    0 Comments
    • Bgracki
    • Experience with Fallopian Tube Cancer
    about 9 years ago
    Bgracki's Avatar

    Bone thinning (osteoporosis)

    Side Effects

    Osteoporosis led to lumbar back surgery in less than 2 years. Rods and screws were inserted surgically.

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    0 Comments
    • Bgracki
    • Experience with Fallopian Tube Cancer
    about 9 years ago
    Bgracki's Avatar

    Bladder problems

    Side Effects

    Became totally incontinent after initial debulking surgery

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    0 Comments
    • Bgracki
    • Experience with Fallopian Tube Cancer
    about 9 years ago
    Bgracki's Avatar

    Drug or Chemo Therapy

    Without a spleen, I had what became severe mouth infections, both bacterial and yeast. After 5th round I ended up in hospital with s...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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