• keahemalie
    • Experience with Squamous Cell Cance...
    about 5 years ago
    keahemalie's Avatar

    Breakthrough

    Celebration

    YAY!! My PET scan done yesterday (March 12) was clear! I see my oncologist next week and will have a follow-up scan in June or July....

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    0 Comments
    • LLewis
    • Experience with Cancer of Unknown Prima...
    over 5 years ago
    LLewis' Avatar

    Implant chemotherapy port

    Procedure or Surgery

    My first port had to be removed because it had a kink in it. Was very painful. The second one is fine.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • LLewis
    • Experience with Cancer of Unknown Prima...
    over 5 years ago
    LLewis' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Was on Chemo for 6 months for colon cancer but they are not able to find it in my colon. It is a rare cancer called a Krukenberg tu...

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    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    Cancer is shrinking

    Celebration

    My Dec 2014 PET scan was clear! No evidence of active disease. I decided to NOT commit to aggressive chemotherapy based on the scan ...

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    0 Comments
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    My local oncologist referred me to an oncologist @ Stanford Cancer Center. November 2014

    Decision Point

    This was to get additional information/other opinion re: treatment. I have been consistently told that the cancer I have is "highly ...

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    0 Comments
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    cyber knife

    Radiation

    Did 5 sessions. The hardest part was laying still for approximately 2 hrs @ each session after a 1.5hr drive to get there! September...

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    Painless Experience: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    Surgery

    Procedure or Surgery

    Outpatient bronchoscopy, August 2014. Biopsy of growth in left lung & markers placed for future "cyberknife" treatment if biopsy was...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    Breakthrough

    Celebration

    I danced at our local Relay for Life! I hadn't danced hula in public for a few years so it meant the world to me.

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    0 Comments
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    PET scan July 2014 noted suspicious area in left lung, hilar region.

    Oh No

    First out-of county referral to an Interventional Pulmonologist.

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    0 Comments
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    Physical therapy for left arm/shoulder/neck; return to lymphedema clinic.

    Other Care

    Some improvement in strength, range of motion on left side. Doing exercises & have added another compression garment; this one for m...

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    0 Comments
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    Finished treatment

    Celebration

    May 2014: Finished radiation and chemotherapy...for now. Continued w/ IV hydration for 2 more weeks.

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    0 Comments
    • keahemalie
    • Experience with Squamous Cell Cance...
    over 5 years ago
    keahemalie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Weekly cisplatin infusions and 2x/wk hydration. Did chemo and radiation together for 8 wks.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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