• Charlieb
    • Experience with Multiple Myeloma
    over 8 years ago
    Charlieb's Avatar

    Mouth sores

    Side Effects

    Same spot every time, under the left side of my of my tongue.

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    0 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    over 8 years ago
    Charlieb's Avatar

    Taste change/loss

    Side Effects

    Even after being off for 1 week, have lost my sense of taste. 4 weeks after last dose and I am just beginning to get my taste back.

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    0 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    over 8 years ago
    Charlieb's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Dexamethasone once a week for three weeks and Revlimid daily for three weeks. A total of 4 rounds then bone marrow transplant. I w...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
    • Charlieb
    • Experience with Multiple Myeloma
    over 8 years ago
    Charlieb's Avatar

    Diagnosed

    Oh No

    Every three months I went in for testing. They took a bone marrow biopsy in 2007, then just blood test. On every visit I was told ...

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    0 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    over 8 years ago
    Charlieb's Avatar

    Diagnosis of small fiber peripheral neuropathy

    Other Care

    In 2007 I was diagnosed with small fiber peripheral neuropathy by a neurologist who reviewed 10 years of my medical history. That d...

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    0 Comments
    • Ibelieve
    • Experience with Multiple Myeloma
    over 8 years ago
    Ibelieve's Avatar

    Breakthrough

    Celebration

    God continues to bless me. Revlimid and Decadron is starting to work on the cancer. My Abn Protein Band (M-Spike) went from 4.1 (O...

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    0 Comments
    • KXW
    • Experience with Multiple Myeloma
    over 8 years ago
    KXW's Avatar

    External radiation

    Radiation

    Process not bad but husband has esophagitis. So painful and he loses 20 lbs. it's taking forever to heal. Cancer continues to grow....

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • KXW
    • Experience with Multiple Myeloma
    over 8 years ago
    KXW's Avatar

    Clinical Trial

    Last therapy stopped working and now onto ct. Drug is referred to as late-stage drug. Not sure if this means the patient is late-st...

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    0 Comments
    • KXW
    • Experience with Multiple Myeloma
    over 8 years ago
    KXW's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    High dose chemo. Blood counts close to zero. Scary to have no white cells left. Waiting. Surprisingly, tho, it seems to have worked....

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • KXW
    • Experience with Multiple Myeloma
    over 8 years ago
    KXW's Avatar

    Side Effects

    There is no 'any and all' choice for sides effects. Lots of them.. Keep thinking that there must be a silver lining here.

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    0 Comments
    • KXW
    • Experience with Multiple Myeloma
    over 8 years ago
    KXW's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The new miracle drugs for myeloma work in 100pct of patients. We soon learn that husband is outlier because they are not working. Ar...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • KXW
    • Experience with Multiple Myeloma
    over 8 years ago
    KXW's Avatar

    Diagnosed

    Oh No

    Yuck. We have both lost spouses to cancer. How is this happening again. First thought This cancer looks to be treatable.

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    0 Comments
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