• Cat
    • Experience with Multiple Myeloma
    about 9 years ago
    Cat's Avatar

    Surgery

    Procedure or Surgery

    Had groin pain found in X-ray 2in. Of femur gone. Went to Standford did surgery next day. They in lay terms scooped out bad area. Pu...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  1. about 9 years ago
    Grandpa_Ray's Avatar

    Cancer is shrinking

    Celebration

    Latest test results are that my bad proteins are in the normal range (17). This will allow me to slide my next chemo round so I can...

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    1 Comment
  2. about 9 years ago
    Grandpa_Ray's Avatar

    Cancer is shrinking

    Celebration

    After 12 doses of Melphalan and 4 doses of Velcade, my Lambda Light Chains have been reduced from 250 to 170 (normal is <26!). That...

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    1 Comment
    • MIZZPAT
    • Experience with Multiple Myeloma
    about 9 years ago
    MIZZPAT's Avatar

    Decision Point

    At 100+ days after her stem cell transplant, we are facing a decision on chemo maintenance vs just monitoring and waiting. Chemo mai...

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    0 Comments
    • MIZZPAT
    • Experience with Multiple Myeloma
    about 9 years ago
    MIZZPAT's Avatar

    stem cell transplant

    Procedure or Surgery

    Had autologus stem cell transplant (using own stem cells - no donor) on 10/21/2011. Stem cell harvesting was laborious but had few ...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    over 9 years ago
    Charlieb's Avatar

    Cancer is shrinking

    Celebration

    After just two rounds of treatment, my protein levels are in the normal range! My doctor is very happy with my response to chemo.

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    2 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    over 9 years ago
    Charlieb's Avatar

    21 days on and one week off

    Celebration

    Just finished my second break on Sunday. Finally started feeling good after being on 2 rounds of chemo. Back on at round 3, so mu...

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    0 Comments
    • Warren
    • Experience with Multiple Myeloma
    over 9 years ago
    Warren's Avatar

    Nausea/Vomiting

    Side Effects

    Had varied side effects, after taking 25 mg Revlimid daily for 5 days, I experienced extreme fatigue, nausea. Dr. reduced taking Re...

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    0 Comments
    • Warren
    • Experience with Multiple Myeloma
    over 9 years ago
    Warren's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    After radiation treatments in hospital, when released, went on high dose steroid and Revlimid.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Warren
    • Experience with Multiple Myeloma
    over 9 years ago
    Warren's Avatar

    Other

    Procedure or Surgery

    Had MRI, cancer discovered, put in hospital next day. Blood work, bone marrow biopsy, spent three weeks in hospital, while receivi...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Warren
    • Experience with Multiple Myeloma
    over 9 years ago
    Warren's Avatar

    Diagnosed

    Oh No

    PCP missed symptoms, consequently delayed treatment If anyone has a 'gut' feeling that the symptoms are not 'just back related', ...

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    1 Comment
  3. over 9 years ago
    DavidEmerson's Avatar

    exercise, nutrition, supplementation, hyperthermia

    Other Care

    Multiple myeloma is an incurable cancer meaning survivors always relapse. Always. Knowing this, when I achieved complete remission ...

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    0 Comments
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