• JCPV
    • Experience with Transitional Cell (Urothe...
    4 months ago
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    Anniversary

    Celebration

    Celebrating 3 years with no remission from the last treatment of Immunotherapy.

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    • AlanGK
    • Experience with Pleomorphic Undifferent...
    4 months ago
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    Anniversary

    Celebration

    5 years out without metastasis. Down to 1 visit per year for screening.

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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    4 months ago
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    Cancer is back/Recurred

    Oh No

    Bone marrow biopsy reveals that MDS has recurred and is at the MRD (Minimum Residual Disease) level of 2.3% blast cells.

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    • itabit
    • Experience with Breast Cancer
    4 months ago
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    External radiation

    Radiation

    burning and peeling were not explained a whole lot. Doctors seem to want to feel superior to you instead of empathetic

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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    • Jinnie_K
    • Experience with Breast Cancer
    4 months ago
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    Health insurance issue

    Oh No

    I took a test that shows my tumor is not sensitive to the taxol drugs and my doctor wants to start me on the taxol drugs. I asked fo...

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    2 Comments
    • Jinnie_K
    • Experience with Breast Cancer
    4 months ago
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    Hormone therapy

    Drug or Chemo Therapy

    Tamoxifen

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    4 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    Consolidation chemotherapy to kill any remaining lymphoma cells.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    4 months ago
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    Moderate intensity haploidentical allogeneic stem cell transplant.

    Procedure or Surgery

    30% mortality within the first three years. Acute, then chronic graft-versus-host-disease.

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • Jinnie_K
    • Experience with Breast Cancer
    4 months ago
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    Targeted therapy

    Drug or Chemo Therapy

    I felt sick all the time and bloody nose daily since starting herceptin and perjeta.

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    4 months ago
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    External radiation

    Radiation

    Total body irradiation (TBI) to kill my failed marrow.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    4 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    Transplant conditioning chemo received at 10X normal dosing.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    4 months ago
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    Stem cell transplant. We had exhausted all lymphoma drugs and after two relapses and a muation/transformation, the liklihood of relapse was great.

    Decision Point

    In 2009, there was no match found for a transplant in the world donor registry. In 2015, there was still no match. No siblings. My t...

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