• Ibelieve
    • Experience with Multiple Myeloma
    over 8 years ago
    Ibelieve's Avatar

    Diagnosed

    Oh No

    I had been told in 2005 that I was a fluke and did not have bone cancer but I had an outrageous amount of protein in my body. I was...

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    1 Comment
    • Karen4
    • Experience with Multiple Myeloma
    over 8 years ago
    Karen4's Avatar

    Other

    Procedure or Surgery

    In December I will have a bone density, bone marrow biopsy, and in-depth labs. I will also get my first round of immunizations. Th...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Karen4
    • Experience with Multiple Myeloma
    over 8 years ago
    Karen4's Avatar

    Other

    Drug or Chemo Therapy

    I am now on maitenance therapy - Revlimid once a day. Since I never reached full remission, and they consider my disease resistant,...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Karen4
    • Experience with Multiple Myeloma
    over 8 years ago
    Karen4's Avatar

    Remission

    Celebration

    The drop down list had several things I celebrated-getting my hair back, though that is still a work in progress for the 2nd time, t...

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    1 Comment
    • Karen4
    • Experience with Multiple Myeloma
    over 8 years ago
    Karen4's Avatar

    Chemo brain

    Side Effects

    Chemo brain was probably the worst side effect of all. Of course, I went through the low blood counts, fatigue, nausea, etc. But t...

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    0 Comments
    • Karen4
    • Experience with Multiple Myeloma
    over 8 years ago
    Karen4's Avatar

    Clinical Trial

    The Revlimid/Thalomid/Dexa clinical trial was my saving grace. It was the only thing so far that finally pushed my cancer down enou...

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    0 Comments
    • Karen4
    • Experience with Multiple Myeloma
    over 8 years ago
    Karen4's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I began a cycle of Velcade, Dexamethasone and Cytoxin. When I finished the first cycle, my 'myeloma proteins' had dropped significa...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Karen4
    • Experience with Multiple Myeloma
    over 8 years ago
    Karen4's Avatar

    Diagnosed

    Oh No

    I am not a person who gets sick much. However, in January of 2010, I got the flu and then pneumonia. OK, fine. I hadn't had the f...

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    0 Comments
    • MIZZPAT
    • Experience with Multiple Myeloma
    over 8 years ago
    MIZZPAT's Avatar

    Diagnosed

    Oh No

    Had repeated colds over several months. Doctor diagnosed anemia, followed for 3 months. Blood tests revealed presence of myeloma cel...

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    0 Comments
  1. over 8 years ago
    lavenderblue's Avatar

    Diagnosed

    Oh No

    I HAVE JUST FOUND OUT iHAVE MULTIPLE MYLOMA. BLOOD & URINE TESTS RESULTS WILL BE IN TOMORROW. I AM UNCERTAIN WHEN TO TELL OUR CHILDR...

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    1 Comment
  2. 4 days ago
    Debbers70's Avatar

    stem cell transplant

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. about 1 month ago
    Suzi-in-SC's Avatar

    Krypolis as a first line treatment for newly diagnosed Multiple Myeloma

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
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