• 66Susie
    • Experience with Diffuse Large B-Cell L...
    almost 8 years ago
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    bone marrow biopsy

    Procedure or Surgery

    OMG!!! Did that ever hurt, The 2 percocets and 1 Ativan given prior did not help. The MD used an entire vial of Lidocaine on the are...

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Halfpint
    • Experience with Mantle Cell Lymphoma
    almost 8 years ago
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    Cancer is shrinking

    Celebration

    the chemo oral drug Inbrutinib is working!!!!!!!!!!!!!!

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    2 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    8 rounds of R-CVP

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    My mind/Sense of Humor

    Loss

    I literally had nooooo brain. Maddening.

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    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Psychosocial

    Other Care

    I felt that receiving mental health treatment during this whole shebang was really vital for me. I was depressed and MAD about havi...

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    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Body part/function

    Loss

    The neuropathy in my feet is significant and appears to be permanent. I am going to undergo psychoneurological testing to determine...

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    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    The neuropathy in my feet appears to be permanent, while I have regained the majority of the feeling in my hands.

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    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Hair loss (alopecia)

    Side Effects

    I really hated this part of chemo as it served as a reminder of CANCER every time I looked in the mirror.

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    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Fatigue (tiredness)

    Side Effects

    Almost overwhelming at times.

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    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Confusion

    Side Effects

    Pretty much 24/7.

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    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Chemo brain

    Side Effects

    This was a major source of frustration for me.

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    0 Comments
    • Aubrey123
    • Experience with Follicular Lymphoma
    almost 8 years ago
    Aubrey123's Avatar

    Medicine for low white blood cell count

    Drug or Chemo Therapy

    I found the bone pain side effect to be almost crippling.

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
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