• matrataz
    • Experience with Brain and Spinal Cord...
    over 8 years ago
    matrataz's Avatar

    External radiation

    Radiation

    8 weeks of radiation. It made me extremely fatigued.....last 2 weeks was total exhaustion to where I just wanted to lay in bed and ...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • matrataz
    • Experience with Brain and Spinal Cord...
    over 8 years ago
    matrataz's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I took Temador. It made me feel ill with upset stomach most of the time. Had to eat before I took it in order to not throw up half...

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  1. over 8 years ago
    dawndragon's Avatar

    Filter for blood clots

    Procedure or Surgery

    we found the blood clots had the filter put in her fever spiked admitted her to the hospital then ct scan of her lungs show blood cl...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. over 8 years ago
    dawndragon's Avatar

    Diagnosed

    Oh No

    blood clots in her leg and lungs

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    0 Comments
    • jREINHARDT
    • Experience with High-Grade Astrocyt...
    over 8 years ago
    jREINHARDT's Avatar

    Seizure Control

    Drug or Chemo Therapy

    Currently trying to minimize my level of seizures. Was on 500mgx twice daily of Keppra from surgery, until July with no seizures. ...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • jREINHARDT
    • Experience with High-Grade Astrocyt...
    over 8 years ago
    jREINHARDT's Avatar

    N0877- Ongoing

    Clinical Trial

    Still participating in N0877 (Sprycel). No end date for the trial is set, but could be ended by the usual suspects, bad reaction, p...

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    0 Comments
    • jREINHARDT
    • Experience with High-Grade Astrocyt...
    over 8 years ago
    jREINHARDT's Avatar

    External radiation

    Radiation

    Went through 30 doses of radiation with the 42 days cycle of oral chemo. Total dose was 6000 units over those 30 days.

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • jREINHARDT
    • Experience with High-Grade Astrocyt...
    over 8 years ago
    jREINHARDT's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have undergone 1x42 of temodor, 5x 5/23 temodor, and I am still participating in clinical trial N0877 (Sprycel- Double blind) Fin...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • jREINHARDT
    • Experience with High-Grade Astrocyt...
    over 8 years ago
    jREINHARDT's Avatar

    Surgery

    Procedure or Surgery

    Underwent Frontal lobe craniotomy under semi-emergency conditions. Cancer was found after i had a seizure while driving home from t...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. over 8 years ago
    dawndragon's Avatar

    Skin changes

    Side Effects

    very dry skin and getting dark spots on her eyelids and down her spine

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    0 Comments
    • proudlfty
    • Experience with High-Grade Astrocyto...
    over 8 years ago
    proudlfty's Avatar

    Procedure or Surgery

    was diagnosed w/ bliobastoma cancer oct. 19th. started following week for chemo and radiation. original oncoogist basically said i ...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Not Specified
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Dymisha
    • Experience with Brain and Spinal Cord ...
    over 8 years ago
    Dymisha's Avatar

    MRI

    Other Care

    November 7, 2012, an MRI was performed to check the tumor.

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    0 Comments
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