• Ibelieve
    • Experience with Multiple Myeloma
    over 9 years ago
    Ibelieve's Avatar

    Energy and independence

    Loss

    My biggest loss has been in the form of energy and independence. I do not have anywhere near the amount of energy I had before canc...

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    0 Comments
    • Ibelieve
    • Experience with Multiple Myeloma
    over 9 years ago
    Ibelieve's Avatar

    Family

    Celebration

    I celebrate God and having a supportive husband, children, parents, siblings, aunts, uncles, nieces, nephews, friends, co-workers, ...

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    0 Comments
    • Ibelieve
    • Experience with Multiple Myeloma
    over 9 years ago
    Ibelieve's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    I have had several side effects but the most severe has been anemia. I have received as of date 34 units of blood and about 10 unit...

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    0 Comments
    • Ibelieve
    • Experience with Multiple Myeloma
    over 9 years ago
    Ibelieve's Avatar

    Clinical Trial

    The Thalidomide worked for a while then the dosage was increased. The new dosage of Thalidomide 200mg worked for a long time until ...

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    0 Comments
    • Ibelieve
    • Experience with Multiple Myeloma
    over 9 years ago
    Ibelieve's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was extremely sick at the beginning. I took and still take ondasetron for nausea. Velcade was given through my port along with Z...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Ibelieve
    • Experience with Multiple Myeloma
    over 9 years ago
    Ibelieve's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Father's Day 2010 weekend, I ended up in the emergency room due to being in a lot of pain, weak, and almost passing. My blood count...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Ibelieve
    • Experience with Multiple Myeloma
    over 9 years ago
    Ibelieve's Avatar

    Diagnosed

    Oh No

    I had been told in 2005 that I was a fluke and did not have bone cancer but I had an outrageous amount of protein in my body. I was...

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    1 Comment
    • Karen4
    • Experience with Multiple Myeloma
    over 9 years ago
    Karen4's Avatar

    Other

    Procedure or Surgery

    In December I will have a bone density, bone marrow biopsy, and in-depth labs. I will also get my first round of immunizations. Th...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Karen4
    • Experience with Multiple Myeloma
    over 9 years ago
    Karen4's Avatar

    Other

    Drug or Chemo Therapy

    I am now on maitenance therapy - Revlimid once a day. Since I never reached full remission, and they consider my disease resistant,...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Karen4
    • Experience with Multiple Myeloma
    over 9 years ago
    Karen4's Avatar

    Remission

    Celebration

    The drop down list had several things I celebrated-getting my hair back, though that is still a work in progress for the 2nd time, t...

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    1 Comment
    • Karen4
    • Experience with Multiple Myeloma
    over 9 years ago
    Karen4's Avatar

    Chemo brain

    Side Effects

    Chemo brain was probably the worst side effect of all. Of course, I went through the low blood counts, fatigue, nausea, etc. But t...

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    0 Comments
    • Karen4
    • Experience with Multiple Myeloma
    over 9 years ago
    Karen4's Avatar

    Clinical Trial

    The Revlimid/Thalomid/Dexa clinical trial was my saving grace. It was the only thing so far that finally pushed my cancer down enou...

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    0 Comments
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