1. almost 6 years ago
    MamaRobina's Avatar

    Health insurance issue

    Oh No

    Our insurance went under and we are going to have to change hospitals and labs, with our new plan, but we get to keep our PCP and Hu...

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    0 Comments
    • 66Susie
    • Experience with Diffuse Large B-Cell L...
    almost 6 years ago
    66Susie's Avatar

    Biopsy of Lymph node (sub-mandibular)

    Procedure or Surgery

    1st biopsy done on 6/3/14 2nd biopsy done on 6/26/14(R salivary gland)

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Madiiisc
    • Experience with Follicular Lymphoma
    almost 6 years ago
    Madiiisc's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Began Rituxan / Treanda treatments June 19, 2014.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Madiiisc
    • Experience with Follicular Lymphoma
    almost 6 years ago
    Madiiisc's Avatar

    Changed my treatment

    Decision Point

    My oncologist and I decided to change my treatment to Rituxan / Treanda because after 3 Rituxan treatments my lymphomas were the sam...

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    0 Comments
    • Madiiisc
    • Experience with Follicular Lymphoma
    almost 6 years ago
    Madiiisc's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started my Rituxan treatments May 29, 2014

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Madiiisc
    • Experience with Follicular Lymphoma
    almost 6 years ago
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    almost 6 years ago
    ariez's Avatar

    PET scan showing 3 suspicious spots

    Oh No

    After being in remission for about a year, my PET scan results did not turn out good. I now have three spots showing that are not i...

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    2 Comments
    • DonnaP
    • Experience with Peripheral T-Cell Lymphoma
    almost 6 years ago
    DonnaP's Avatar

    Autologous Stem Cell Transplant

    Decision Point

    My oncologist wants to do one more round of the brentuximab and check results with. PET then start working with a team for a stem ce...

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    2 Comments
    • DonnaP
    • Experience with Peripheral T-Cell Lymphoma
    almost 6 years ago
    DonnaP's Avatar

    Brentuximab

    Drug or Chemo Therapy

    This is way easier than the R-CHOP I had in 2012

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • computurtl
    • Experience with Lymphoplasmacytic L...
    almost 6 years ago
    computurtl's Avatar

    Memory changes

    Side Effects

    Mom has become confused, disoriented and even delirious. She thought that her anniversary was that day (in June) when her anniversa...

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    0 Comments
    • computurtl
    • Experience with Lymphoplasmacytic L...
    almost 6 years ago
    computurtl's Avatar

    Eating problems (anorexia)

    Side Effects

    After having unexplained (saw several doctors) abdominal pain, Mom is refusing to eat. Don't know if it's fear or stubbornness. Sh...

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    0 Comments
    • computurtl
    • Experience with Lymphoplasmacytic L...
    almost 6 years ago
    computurtl's Avatar

    Rituxin treatments

    Procedure or Surgery

    The first couple of Rituxin treatments went well. Nagging feeling that her primary care physician was not capable of treating her a...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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