• Madiiisc
    • Experience with Follicular Lymphoma
    over 6 years ago
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    over 6 years ago
    ariez's Avatar

    PET scan showing 3 suspicious spots

    Oh No

    After being in remission for about a year, my PET scan results did not turn out good. I now have three spots showing that are not i...

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    2 Comments
    • DonnaP
    • Experience with Peripheral T-Cell Lymphoma
    over 6 years ago
    DonnaP's Avatar

    Autologous Stem Cell Transplant

    Decision Point

    My oncologist wants to do one more round of the brentuximab and check results with. PET then start working with a team for a stem ce...

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    2 Comments
    • DonnaP
    • Experience with Peripheral T-Cell Lymphoma
    over 6 years ago
    DonnaP's Avatar

    Brentuximab

    Drug or Chemo Therapy

    This is way easier than the R-CHOP I had in 2012

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • computurtl
    • Experience with Lymphoplasmacytic L...
    over 6 years ago
    computurtl's Avatar

    Memory changes

    Side Effects

    Mom has become confused, disoriented and even delirious. She thought that her anniversary was that day (in June) when her anniversa...

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    0 Comments
    • computurtl
    • Experience with Lymphoplasmacytic L...
    over 6 years ago
    computurtl's Avatar

    Eating problems (anorexia)

    Side Effects

    After having unexplained (saw several doctors) abdominal pain, Mom is refusing to eat. Don't know if it's fear or stubbornness. Sh...

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    0 Comments
    • computurtl
    • Experience with Lymphoplasmacytic L...
    over 6 years ago
    computurtl's Avatar

    Rituxin treatments

    Procedure or Surgery

    The first couple of Rituxin treatments went well. Nagging feeling that her primary care physician was not capable of treating her a...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • computurtl
    • Experience with Lymphoplasmacytic L...
    over 6 years ago
    computurtl's Avatar

    Mother was diagnosed, I live 4 states away

    Oh No

    At first, Mom was doing ok, having some symptoms, but still living fairly "normally". She was able to get around, still go to churc...

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    0 Comments
    • 66Susie
    • Experience with Diffuse Large B-Cell L...
    over 6 years ago
    66Susie's Avatar

    Other

    Oh No

    Just recently diagnosed(3 days ago) met with oncologist yesterday. Awaiting appt for PET scan and bone marrow biopsy. I'm scared and...

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    2 Comments
    • kiki95632
    • Experience with Extranodal Marginal ...
    over 6 years ago
    kiki95632's Avatar

    Celebration

    I am celebrating that the CT Scan I had on Monday the 6/16/14 showed that the tumors in my lungs are shrinking after 3 rounds of che...

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    0 Comments
    • Cliffk1
    • Experience with Non-Hodgkin Lymphoma (...
    over 6 years ago
    Cliffk1's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had 7 chemo treatments, 5 was standard, shrunk abdominal mass to 1/4 size, surgery not an option nor radiation. Over time, shrank ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Santana
    • Experience with Mantle Cell Lymphoma
    over 6 years ago
    Santana's Avatar

    Cancer is back/Recurred

    Oh No

    Well, Two weeks after I went into remission for the sixth time, I noticed a hard growth above my right eye. Two weeks ago I was adm...

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    3 Comments
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