• Dymisha
    • Experience with Brain and Spinal Cord ...
    over 7 years ago
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    2nd Seizure

    Oh No

    August 11, 2012 was my parent's wedding anniversary. They were at home, preparing to go to work for the first time in a month. My ...

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    • Dymisha
    • Experience with Brain and Spinal Cord ...
    over 7 years ago
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    1st Symptom

    Oh No

    My Dad was always a healthy man. He turned 64 in June, and rarely missed a day of work. On July 5, 2012, he was at work, and began ...

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    • Dymisha
    • Experience with Brain and Spinal Cord ...
    over 7 years ago
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    External radiation

    Radiation

    He spent 6 weeks having radiation 5 times per week, TrueBeam2, at MD Anderson.

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Dymisha
    • Experience with Brain and Spinal Cord ...
    over 7 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    We headed to Houston to MD Anderson on Labor Day. He spent 6 weeks having Temodar orally everyday.

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Dymisha
    • Experience with Brain and Spinal Cord ...
    over 7 years ago
    Dymisha's Avatar

    Diagnosed

    Oh No

    The doctor gave us the news: Glioblastoma Multiforme Grade 4, 3 month survival without treatment, 1 year with treatment

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    • Dymisha
    • Experience with Brain and Spinal Cord ...
    over 7 years ago
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    Surgery

    Procedure or Surgery

    The doctors said he had a lesion on his brain, and they would operate to see what it was. On August 16, 2012, an invasive biopsy wa...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Mgrose88
    • Experience with Medulloblastoma
    over 7 years ago
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    Birth

    Celebration

    Through the middle of this my Daughter was born in December 12, 2011

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    • Mgrose88
    • Experience with Medulloblastoma
    over 7 years ago
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    Finished treatment

    Celebration

    Finish radiation at the end of February 2012

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    • Mgrose88
    • Experience with Medulloblastoma
    over 7 years ago
    Mgrose88's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Was in the hospital every 3-4 weeks with low counts

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Mgrose88
    • Experience with Medulloblastoma
    over 7 years ago
    Mgrose88's Avatar

    Surgery

    Procedure or Surgery

    Felt I lost a lot of my function on my right side.

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. almost 8 years ago
    blackcamaros' Avatar

    Surgery

    Procedure or Surgery

    JUne 28th: I had surgery to replace the bone flap. I was in surgery early in the morning, and released to go home JUne 29th.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. almost 8 years ago
    dawndragon's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    So far she is not having alot of side effects but we are only just getting started. She is having chemo and radiation every business...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
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