• Mgrose88
    • Experience with Medulloblastoma
    over 7 years ago
    Mgrose88's Avatar

    Finished treatment

    Celebration

    Finish radiation at the end of February 2012

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    • Mgrose88
    • Experience with Medulloblastoma
    over 7 years ago
    Mgrose88's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Was in the hospital every 3-4 weeks with low counts

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Mgrose88
    • Experience with Medulloblastoma
    over 7 years ago
    Mgrose88's Avatar

    Surgery

    Procedure or Surgery

    Felt I lost a lot of my function on my right side.

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 7 years ago
    blackcamaros' Avatar

    Surgery

    Procedure or Surgery

    JUne 28th: I had surgery to replace the bone flap. I was in surgery early in the morning, and released to go home JUne 29th.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. over 7 years ago
    dawndragon's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    So far she is not having alot of side effects but we are only just getting started. She is having chemo and radiation every business...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Fusionera
    • Experience with Intermediate-Grade A...
    over 7 years ago
    Fusionera's Avatar

    MRI #65 is clear! Moving on to scans every 3 months instead of every 8 weeks!!!

    Celebration

    YAY! MRI #65 was stable...no changes...no sign of that dumb BT..the hole in my head is clear! My neuro-oncologist said it was very e...

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  3. over 7 years ago
    the_older_one's Avatar

    Diagnosed

    Oh No

    Dad has been diagnosed with Glioblastoma Stage 4

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  4. over 7 years ago
    i_am_scared's Avatar

    Numerous questions in my head!

    Decision Point

    1. As of today - should I break the news to my dad (patient) and my mother just now? Dad - He's just out of surgery and reco...

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    1 Comment
  5. over 7 years ago
    i_am_scared's Avatar

    Diagnosed

    Oh No

    After a few days (30th October 2012) the test results arrived. Holiday season in Bangalore, South India where I am. Hence the delay....

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    0 Comments
  6. over 7 years ago
    i_am_scared's Avatar

    Surgery

    Procedure or Surgery

    My dad was prepared for the surgery which was done on the 20th October 2012. He is a courageous person and we were by his side wishi...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  7. over 7 years ago
    i_am_scared's Avatar

    Diagnosed

    Oh No

    As we got to the hospital, my dad went through a few tests (Blood, urine and a brain CT scan). The doctors suspected a Brain Tumor ...

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  8. over 7 years ago
    i_am_scared's Avatar

    Initial Visit to a General Practitioner

    Clinical Trial

    My father, aged 62, was absolutely normal until about the 3rd week of September 2012. Just to give you some basic info - He has neve...

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    0 Comments
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