• sunmoonie
    • Experience with Ovarian and Fallopia...
    about 7 years ago
    sunmoonie's Avatar

    Remission

    Celebration

    I was happy to achieve remission, but I felt like I was waiting for the other shoe to drop. I worried and was fearful of a recurren...

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    0 Comments
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    about 7 years ago
    sunmoonie's Avatar

    Loss of over 70 friends in the ovarian cancer community

    Loss

    After my diagnosis, I was meeting women from all over the country at ovarian cancer retreats, conferences, etc. In the 16 years sin...

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    0 Comments
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    about 7 years ago
    sunmoonie's Avatar

    My mind/Sense of Humor

    Loss

    I felt a sense that my body betrayed me. I was distrustful that I would stay well. I had to learn to trust myself and my body agai...

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    0 Comments
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    about 7 years ago
    sunmoonie's Avatar

    After treatment, I had to decide whether to have a second look surgery

    Decision Point

    I had a laparoscopic second look surgery which was clear. An IP port was placed for possible future chemo. Was never needed and ne...

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    0 Comments
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    about 7 years ago
    sunmoonie's Avatar

    Nausea/Vomiting

    Side Effects

    Nausea, bone pain, chemo brain, hair loss, weakness, depression, e coli infection which required hospitalization

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    0 Comments
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    about 7 years ago
    sunmoonie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had hard to find and small veins. My first chemo took 6 sticks. I had a port placed soon after.

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    about 7 years ago
    sunmoonie's Avatar

    Debulking surgery

    Procedure or Surgery

    Total hysterectomy. First surgery ever and first time in the hospital.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    about 7 years ago
    sunmoonie's Avatar

    Ovarian and Endometrial Cancer Diagnosis

    Oh No

    Shock, disbelief that I would have cancer

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    0 Comments
    • dkelly
    • Experience with Primary Peritoneal Carc...
    about 7 years ago
    dkelly's Avatar

    Other

    Oh No

    Shocked and surprised...I have rarely been sick.

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    3 Comments
    • nferro9925
    • Experience with Ovarian and Fallopi...
    about 7 years ago
    nferro9925's Avatar

    Drug or Chemo Therapy

    Today was the first of 6 chemo treatments = and other than a very long day, so far just tired. I made sure I ate when I got home, j...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    16 Comments
  1. about 7 years ago
    sandylnelson's Avatar

    Will I do more chemo if I have a reoccurace?

    Decision Point

    I'm of a mind at this point to end general chemotherapy treatment in the future. I would do surgery, or targeted meds, but I just d...

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    0 Comments
  2. about 7 years ago
    sandylnelson's Avatar

    Nausea/Vomiting

    Side Effects

    Many long-term, permanent side effects. Neuropathy in hands, legs and feet, hearing loss, dental work, depression, scars. Have had...

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    0 Comments
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