• bill1967
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    bill1967's Avatar

    Full lymph node dissection

    Procedure or Surgery

    5/22/11: Complete lymph node dissection on right side of neck (37 nodes removed, all negative). Some nerve damage which caused shoul...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • bill1967
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    bill1967's Avatar

    Tumor Infiltrating Lymphocytes (at NIH)

    Clinical Trial

    8/20/12 through 9/10/12 at National Institutes of Health (NIH-09-C-0123). Randomized with TBI. Only received 2 grays of TBI (out ...

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    0 Comments
    • bill1967
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    bill1967's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Sylatron (7/11 to 3/12): 2 months high-dose; rest of treatment low-dose until recurrence in 3/12 Very tired first two months duri...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  1. about 8 years ago
    crosstrainer's Avatar

    16 years melanoma free and peace of mind in routine follow-up

    Celebration

    It has been 16 years since my diagnosis of melanoma. I follow-up faithfully with twice yearly full body checks (and have full body ...

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    0 Comments
  2. about 8 years ago
    crosstrainer's Avatar

    Surgery

    Procedure or Surgery

    I was fortunate that my dermatologist was connected with UPenn. She referred me to a plastic surgeon who said they would need to ta...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. about 8 years ago
    crosstrainer's Avatar

    Diagnosed

    Oh No

    I had a small mole on my thigh, that my mother thought looked suspicious. (She, too, had had melanoma 10 years earlier.) So, I lis...

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    • Cierra
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    Cierra's Avatar

    Finished treatment

    Celebration

    I finished treatment a year after my surgery. I went from seeing the dermatologist every 3 months to twice a year. I'm now 8 years c...

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    1 Comment
    • Cierra
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    Cierra's Avatar

    Full lymph node dissection

    Procedure or Surgery

    I had my surgery on my 5th birthday.

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • JudiG
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    JudiG's Avatar

    I'm currently at a decision point and don't know how to proceed

    Decision Point

    I've been very fortunate in that my melanoma has always been slow growing and so far has stayed in my leg. Some of my clinical tria...

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    1 Comment
    • JudiG
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    JudiG's Avatar

    Chemotherapy and immunotherapy combined (biochemotherapy)

    Drug or Chemo Therapy

    I had strong chemo twice which made me lose all my hair. Also the immunotherapy has permanently affected my system and made me alle...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • JudiG
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    JudiG's Avatar

    Wide excision surgery

    Procedure or Surgery

    I've had many surgeries. The most major was an ILP (Isolated Limb Profusion) on my whole right leg. This caused extensive swelling ...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • JudiG
    • Experience with Skin Cancer - Melanoma
    about 8 years ago
    JudiG's Avatar

    Multiple

    Clinical Trial

    I've been thru Interferon IL2 Ipilimumab 2 immuno therapy trials at NCI in Bethesda 2 trials with Adeno virus being injected d...

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    0 Comments
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