• daca1964
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    daca1964's Avatar

    INTER FERON

    Drug or Chemo Therapy

    Did One month of inter feron five days a week then Eleven months of inter feron 3 times a week shots. Side effect I had them all, ...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Cancer is back/Recurred

    Oh No

    3/12: Subcutaneous recurrence along wide excision incision. Biopsied and confirmed to be melanoma. Sylatron is discontinued.

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    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Cancer is back/Recurred

    Oh No

    6/4/12: PET scan shows enlarged node near larynx. Biopsied and confirmed to be melanoma. (Note: This node never reappeared in any fu...

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    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Surgery to remove cancer that has spread

    Procedure or Surgery

    7/12: Surgery to remove 3 cm submandibular mass for processing in future tumor infiltrating lymphocyte (TIL) study at NIH. (TIL cell...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Surgery to remove cancer that has spread

    Procedure or Surgery

    3/12: Removed subcutaneous recurrence along base of incision (near midline of neck). Confirmed to be melanoma (2.5 cm).

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Simple removal surgery

    Procedure or Surgery

    3/31/11: Removed black mole near front of right ear. (Diagnosed as melanoma, Clark's Level IV (2.4mm deep))

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    4/22/11: Wide excision of area in front of right ear and SLN biopsy. Four nodes removed, one positive with 0.18 mm micro metastasis...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Full lymph node dissection

    Procedure or Surgery

    5/22/11: Complete lymph node dissection on right side of neck (37 nodes removed, all negative). Some nerve damage which caused shoul...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Tumor Infiltrating Lymphocytes (at NIH)

    Clinical Trial

    8/20/12 through 9/10/12 at National Institutes of Health (NIH-09-C-0123). Randomized with TBI. Only received 2 grays of TBI (out ...

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    • bill1967
    • Experience with Skin Cancer - Melanoma
    over 7 years ago
    bill1967's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Sylatron (7/11 to 3/12): 2 months high-dose; rest of treatment low-dose until recurrence in 3/12 Very tired first two months duri...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  1. over 7 years ago
    crosstrainer's Avatar

    16 years melanoma free and peace of mind in routine follow-up

    Celebration

    It has been 16 years since my diagnosis of melanoma. I follow-up faithfully with twice yearly full body checks (and have full body ...

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  2. over 7 years ago
    crosstrainer's Avatar

    Surgery

    Procedure or Surgery

    I was fortunate that my dermatologist was connected with UPenn. She referred me to a plastic surgeon who said they would need to ta...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
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