• samcat
    • Experience with Myelodysplastic Syndrom...
    over 5 years ago
    samcat's Avatar

    Other

    Decision Point

    Just too old and too dangerous for a bone marrow transplant, and really skeptical about the suggestion of lower doses of chemo.

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    0 Comments
    • samcat
    • Experience with Myelodysplastic Syndrom...
    over 5 years ago
    samcat's Avatar

    Infections.

    Side Effects

    After almost dying from infection, massive doses of broad spectrum antibiotics,and the inability for my bone marrow to start working...

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    0 Comments
    • samcat
    • Experience with Myelodysplastic Syndrom...
    over 5 years ago
    samcat's Avatar

    Dacogen

    Drug or Chemo Therapy

    Almost died. Any chemo kills of the bad cancer cells, but also kills off your good cells eg. white, red, platelets.The only hope wit...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • samcat
    • Experience with Myelodysplastic Syndrom...
    over 5 years ago
    samcat's Avatar

    Bone Marrow test

    Procedure or Surgery

    Not a big deal, just local tenderness for a few weeks

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • samcat
    • Experience with Myelodysplastic Syndrom...
    over 5 years ago
    samcat's Avatar

    Oh No

    Diagnosed with myelodisplastic syndrome ,not really sure of all the ramifications

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    0 Comments
    • MorganLA
    • Experience with Myelodysplastic Syndr...
    about 1 year ago
    MorganLA's Avatar

    Jakafi

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • ERC
    • Experience with Myelodysplastic Syndrome (...
    over 4 years ago
    ERC's Avatar

    My husband lost his voice in December 2013 had a very sore throat, trouble breathing, sleeping, feeling bad. Took him to an ENT and he thought he had vocal cord cancer and wanted to do a biopsy. After scheduling an appointment for the biopsy he went to ge

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • maryl
    • Experience with Myelodysplastic Syndrome...
    over 4 years ago
    maryl's Avatar

    Referral to hematologist, took 1 look at husband & history of 6 blood transfusions, & said MD Syndrome. Confirmed with bone marrow biopsy Jan. 2014

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • maryl
    • Experience with Myelodysplastic Syndrome...
    over 4 years ago
    maryl's Avatar

    GI tests, scopes, swallow camera, still wt#*!? Dec 2013

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • samcat
    • Experience with Myelodysplastic Syndrom...
    over 5 years ago
    samcat's Avatar

    procrit, simple, easy, and absolutely no help. Did not stimulate bone marrow production.

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
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