1. 29 days ago
    MaggieB58's Avatar

    I made it though 5 years!

    Celebration

    On March 6th 2012 I received the diagnosis, on March 6th 2017 I celebrated the 5 year mark. On March 29th, 2017.....yesterday.....I ...

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    2 Comments
  2. 29 days ago
    MaggieB58's Avatar

    External radiation

    Radiation

    It felt like I was getting up to go to work everyday, mostly because radiation was at the hospital that I had worked at until the di...

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. 29 days ago
    MaggieB58's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    They stopped at 4 rounds of chemo, I just wasn't tolerating it. Ended up with angio edema, anasarca and my thyroid crashed in round...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 29 days ago
    MaggieB58's Avatar

    Misdiagnosed

    Oh No

    First the mammogram, then the repeat mammogram with ultrasound. 1 lump. Then Dr office misplace my pre-auth paperwork for MRI. P...

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    2 Comments
    • JJinTX
    • Experience with Basal Cell Carcinoma, S...
    29 days ago
    JJinTX's Avatar

    Topical drugs (on the skin)

    Drug or Chemo Therapy

    Initial treatment, just diagnosed 3/22/17 with superficial BCC on leg per MA who called me from Dermatologist office. Apply 5-FU oin...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. 30 days ago
    warrior84's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    had to place on left side due to right clavicle fractured from disease

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 30 days ago
    warrior84's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    i was originally diagnosed in 2009 with plasma cytoma they removed tumor off my sacrum spine did 8 weeks of radiation and saw my onc...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. about 1 month ago
    Jadanovic's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had 8 does of chemo every 2 weeks. 4 rounds AC 4 rounds taxol- it is no walk in the park but not as bad as I had expected.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    How to proceed following surgery

    Decision Point

    MRSA, etc significantly slowed healing. Cancer moving aggressively along nerve to base of skull and margin missed. Decision to pro...

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    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    External radiation

    Radiation

    Radiation twice daily for 6 weeks.

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Milder chemo rounds, to boost the extreme radiation

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Surgery

    Procedure or Surgery

    22 hour surgery to replace 75% of jaw bone with leg bone and skin grafts. Another feeding tube. Did NOT get a clear margin. MRSA, ...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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