• gttngd
    • Experience with Bone Cancer
    about 1 month ago
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    Birthday

    Celebration

    I have celebrated 3 years of my re-birthday! I am 100% donor cells 3 years later.

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    • gttngd
    • Experience with Bone Cancer
    about 1 month ago
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    Hospitalization

    Other Care

    Hospitalized for one month, lodged in an American Cancer Society housing, home care from PT, OT, RN from Lifetime Care. Husband is ...

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    • gttngd
    • Experience with Bone Cancer
    about 1 month ago
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    Bone thinning (osteoporosis)

    Side Effects

    There are at least ten side effects on the list of side effects. I experienced side effects of chemotherapy, the stem cell transpla...

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    • gttngd
    • Experience with Bone Cancer
    about 1 month ago
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    Just Diagnosed

    Oh No

    Diagnosed with a very rare bone cancer; Myeloproliferative Neoplasm that was Myelofibrosis.

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    • gttngd
    • Experience with Bone Cancer
    about 1 month ago
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    Had to decide to have a stem cell transplant or not. Given a 50/50 chance of survival.

    Decision Point

    It was going to be a long arduous recovery and I was warned of it's difficult recovery. It took at least a year to regain my streng...

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    • gttngd
    • Experience with Bone Cancer
    about 1 month ago
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    Other

    Procedure or Surgery

    Stem cell transplant left me incapacitated for about 1 year.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • gttngd
    • Experience with Bone Cancer
    about 1 month ago
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    Chemotherapy

    Drug or Chemo Therapy

    Lost 50 lbs & the ability to walk normally due to weakness in 2016. I had to have chemo for a stem cell transplant.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • Mred
    • Experience with Adenocarcinoma, Lung Cancer
    about 1 month ago
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    Oh No

    I have metastatic NSCL adenocarcinoma I have had Carboplatin Altima and Keytruda it's holding off lung modules but not lympnodes I h...

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    • willie
    • Experience with Ovarian and Fallopian T...
    about 1 month ago
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    Cancer is back/Recurred

    Oh No

    Our MEK-inhibitor trial has come to an end after about 4 years. BUT, we are about 9 years into the Ovarian Cancer diagnosis, meani...

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    • PookieR
    • Experience with Adenocarcinoma, Pancre...
    about 1 month ago
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    Diarrhea

    Side Effects

    Constant after Whipple. Heavily medicated on hydrocodone and elixir of opium to slow down digestion. Losing weight plus chemo issues.

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    • PookieR
    • Experience with Adenocarcinoma, Pancre...
    about 1 month ago
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    Chemotherapy

    Drug or Chemo Therapy

    No bueno.

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • PookieR
    • Experience with Adenocarcinoma, Pancre...
    about 1 month ago
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    Surgery

    Procedure or Surgery

    Whipple, Northside Hospital staff not well trained for patients after this surgery. Dietician not trained.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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