• rjkbishop
    • Experience with Distal (Extrahepatic...
    about 7 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Underwent first treatment with no side effects as of yet. Next treatment in 2 days.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • rjkbishop
    • Experience with Distal (Extrahepatic...
    about 7 years ago
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    Procedure or Surgery

    The port was installed as an outpatient procedure with minimal discomfort

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • txnurse61
    • Experience with Intrahepatic, Bile D...
    over 7 years ago
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    Psychosocial

    Other Care

    This is very hard for the whole family, it is difficult to know what he and his wife are experiencing, and exactly what they are bei...

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    • txnurse61
    • Experience with Intrahepatic, Bile D...
    over 7 years ago
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    Diagnosis

    Oh No

    Hearing he has cancer was so shocking

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    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 7 years ago
    moxie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The MRS started chemo last Thursday, tomorrow, 3/28, will be #2. GEMZAR and Cisplatin. plus anti nausea med ZOFRAN, and was prescrib...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • BK3
    • Experience with Bile Duct (Cholangiocarcin...
    over 7 years ago
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    Fatigue (tiredness)

    Side Effects

    Nausea, appetite loss, taste change, weight loss, sadness

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    0 Comments
    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 7 years ago
    moxie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Saw Dr Andrew Zhu at Mass General Hosp Boston. Spouse, Rosy, has a PET scan scheduled for tomorrow. They have scheduled her to start...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    over 7 years ago
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    Decision Point

    Dr. Told me two weeks ago that the chemo I was currently on was all he had to offer. We decided to increase the dosage. Wrong move. ...

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    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 7 years ago
    moxie's Avatar

    today we have appt at Mass General Hosp Cancer Ctr with gastro specialist

    Oh No

    After 4 tests[xray, cat scan, ERCP to place biliary stent, and Endoscopic ultrasound that took 6 biopsy samples AND fluid from the p...

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    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 7 years ago
    moxie's Avatar

    4 tests--xray, cat scan, ERCP, Endoscopic Ultrasound and still no confirmed diagnosis..only that things 'look suspicious'

    Oh No

    We started at our normal hospital. Upon being told they wanted to repeat the Endoscopic Ultrasound, we told them we'd be going to MG...

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    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 7 years ago
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    Side Effects

    I was on both the chemo pump and systemic at the same time. There came a week when I just bent over with the pain. No one could find...

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    • cldunn5
    • Experience with Bile Duct (Cholangioca...
    over 7 years ago
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    Remission

    Celebration

    I've passed my one year since my surgery. The follow up scans since treatment concluded (4/2/2012) have shown no recurrence!!

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    0 Comments
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