• angelgrl
    • Experience with Bladder Cancer
    over 3 years ago
    angelgrl's Avatar

    Shock

    Oh No

    Was shocked to hear that I was diagnosed with T2 high grade muscle invasive bladder cancer. Why me?

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    0 Comments
    • gonewest
    • Experience with Transitional Cell (Ur...
    over 3 years ago
    gonewest's Avatar

    Second opinion scheduled

    Decision Point

    City of Hope

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    0 Comments
    • gonewest
    • Experience with Transitional Cell (Ur...
    over 3 years ago
    gonewest's Avatar

    Chemo

    Decision Point

    Carboplatin/gemcitabine to begin in January.

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    2 Comments
    • Lobotex
    • Experience with Bladder Cancer
    over 3 years ago
    Lobotex's Avatar

    Finished treatment

    Celebration

    Last dose of chemo held due to low blood work numbers. Now we test, wait and pray.

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    0 Comments
    • Lobotex
    • Experience with Bladder Cancer
    over 3 years ago
    Lobotex's Avatar

    Internal radiation

    Radiation

    Be prepared to take lots of naps. Really brings on the fatigue. I did not experience skin irritation, others may.

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Lobotex
    • Experience with Bladder Cancer
    over 3 years ago
    Lobotex's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo was tough. Emend took care of the nausea. Always tired and it took a toll on my blood work numbers. Put them in the toilet. Bl...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • gonewest
    • Experience with Bladder Cancer
    over 3 years ago
    gonewest's Avatar

    Remission

    Celebration

    Carcinoma in situ gone. Never became invasive.

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    7 Comments
    • leroy
    • Experience with Bladder Cancer
    over 3 years ago
    leroy's Avatar

    Remove bladder

    Decision Point

    Have had over 30 treatments. My immune or my body has rejected treatments. Surgery 30 Sept. 2015 to clean inside of bladder. What is...

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    1 Comment
  1. almost 4 years ago
    proudmary's Avatar

    Fatigue (tiredness)

    Side Effects

    Going to see urologist for cysto in two weeks before next round of BCG. Doc does not recognize the severe fatigue I suffer for 4-6 w...

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    0 Comments
  2. almost 4 years ago
    Journey2014's Avatar

    BSG weekly

    Drug or Chemo Therapy

    Starting BCG on 9/11/15 for 6 weeks

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Bud
    • Experience with Bladder Cancer
    almost 4 years ago
    Bud's Avatar

    Selection of optimal treatment plan.

    Decision Point

    My cousin has just been diagnosed with Plasmacytoid Urothelial Carcinoma. It's a rare form of bladder cancer and effective treatmen...

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    1 Comment
    • gonewest
    • Experience with Bladder Cancer
    almost 4 years ago
    gonewest's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Gemcitibine instillation into bladder six times.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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