• brookem
    • Experience with Chronic Lymphocytic Le...
    over 6 years ago
    brookem's Avatar

    Feeling like I can't talk about it an when I do people tell me how lucky i am to get this kind

    Oh No

    I feel so alone even my partner is just pretending nothing is happened. I am so grateful that I am not as sick as the two friends I ...

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    1 Comment
    • Orval
    • Experience with Chronic Lymphocytic Leuk...
    over 6 years ago
    Orval's Avatar

    Cancer is shrinking

    Celebration

    I think the feeling i had when the Dr told me my 6 treatment had worked at least for the time being was relief for my children and ...

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    0 Comments
    • Orval
    • Experience with Chronic Lymphocytic Leuk...
    over 6 years ago
    Orval's Avatar

    Nausea medicine

    Drug or Chemo Therapy

    The chemo takes a lot out of most people . Fatigue and loss of appetite , also the loss of taste or abnormal taste and smell. It is ...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Orval
    • Experience with Chronic Lymphocytic Leuk...
    over 6 years ago
    Orval's Avatar

    Could not decide on whether to take treatments on account of my age

    Oh No

    My son had gone thru the same treatments 7 yrs before but had to have stem cell transplant to survive. I decided for the treatments ...

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    0 Comments
    • jvertalka2
    • Experience with Chronic Lymphocytic...
    over 6 years ago
    jvertalka2's Avatar

    Chemo brain

    Side Effects

    Still have some memory problems. Also had appetite loss, bad taste in my mouth, and fatigue.

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    0 Comments
    • jvertalka2
    • Experience with Chronic Lymphocytic...
    over 6 years ago
    jvertalka2's Avatar

    drug trial - Lenolinamide

    Clinical Trial

    May have spelling wrong - drug given in addition to accepted protocol for CLL - hope is to lengthen period of remission after chemo.

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    0 Comments
    • jvertalka2
    • Experience with Chronic Lymphocytic...
    over 6 years ago
    jvertalka2's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    First infusion was very tough. After that, they gave me something to counteract the side effects, and there were no problems.

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    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Norah
    • Experience with Chronic Lymphocytic Leuk...
    over 6 years ago
    Norah's Avatar

    Finished treatment

    Celebration

    Free of lymphocytes no long receiving chemo, but getting Ritoxin every 6 months. I don't have any side affects yet, but was told mo...

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    1 Comment
    • rmlg
    • Experience with Chronic Lymphocytic Leuke...
    over 6 years ago
    rmlg's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I felt it was physically easy, however mentally it was earth shattering that first time.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
    • rmlg
    • Experience with Chronic Lymphocytic Leuke...
    over 6 years ago
    rmlg's Avatar

    bone marrow bx

    Procedure or Surgery

    Thankful for IV sedation! My bone was so hard the first biopsy needle did not work. They had to use a different one to get it.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • rmlg
    • Experience with Chronic Lymphocytic Leuke...
    over 6 years ago
    rmlg's Avatar

    Surgery

    Procedure or Surgery

    Removal lymph node lt axilla

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  1. over 6 years ago
    junebugg1961's Avatar

    Cancer is back/Recurred

    Oh No

    I was dx in 2005 went into remission in 2008. Then out of remission in 2010 and goimg to start treatment again in a week

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    1 Comment
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