1. 12 months ago
    warrior84's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Well my Myeloma relapsed and I'm back in weekly treatment but takes so much longer that it did first time around but much different ...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Glenelyn
    • Experience with Multiple Myeloma
    about 1 year ago
    Glenelyn's Avatar

    Isatuximab

    Clinical Trial

    I began trial in August 2017 because my igG was over 6160 and is now 257. my Kappa/Lambda ratio was 4.39 and is now 1.38. It’s wor...

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    1 Comment
  2. about 1 year ago
    annetteOR's Avatar

    Birthday

    Celebration

    3rd Year Post Transplant birthday was April 3, 2018. Remission continues!

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    0 Comments
  3. about 1 year ago
    annetteOR's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Daily oral Revlimid maintenance treatment began when the 100 day bone marrow biopsy results came in, and continue now and into the f...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. about 1 year ago
    annetteOR's Avatar

    Hair loss (alopecia)

    Side Effects

    Completely lost the hair on my head on the exact day is was expected to happen, based on the two days just before transplant that th...

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    0 Comments
  5. about 1 year ago
    annetteOR's Avatar

    Remission

    Celebration

    100 days post transplant a bone marrow biopsy was performed and it was determined I was in complete remission.

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    0 Comments
  6. about 1 year ago
    annetteOR's Avatar

    autologous stem cell transplant

    Procedure or Surgery

    The recovery was long and hard for me.

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. about 1 year ago
    annetteOR's Avatar

    Fatigue (tiredness)

    Side Effects

    After 12 weeks of chemo, I went out on disability after being unable to get to work enough hours in the week to constitute full time...

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    0 Comments
  8. about 1 year ago
    annetteOR's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    CyBorD (Cytoxan/Velcade/Dexamethasone) administered March 2014 through June 2014. Switched to Revlimid/Velcade/Dexamethasone July 20...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  9. about 1 year ago
    annetteOR's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Had Zometa monthly for one year. The first infusion caused flu-like symptoms for the two or three days following treatment. Subseque...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  10. about 1 year ago
    annetteOR's Avatar

    Anemia medicine

    Drug or Chemo Therapy

    Had three transfusions in the early months of the illness.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  11. about 1 year ago
    annetteOR's Avatar

    Just Diagnosed

    Oh No

    Diagnosed with Multiple Myeloma February 2014 after two months of severe back pain. I am a second generation MM patient. Thought MM ...

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    0 Comments
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