• po18guy
    • Experience with Angioimmunoblastic T-C...
    11 months ago
    po18guy's Avatar

    Stem cell transplant. We had exhausted all lymphoma drugs and after two relapses and a muation/transformation, the liklihood of relapse was great.

    Decision Point

    In 2009, there was no match found for a transplant in the world donor registry. In 2015, there was still no match. No siblings. My t...

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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    11 months ago
    po18guy's Avatar

    A trial was created solely for my case. "TEC" Treanda (Bendamustine), Etoposide and Carboplatin.

    Clinical Trial

    This combination was stunningly effective. It eliminated two aggressive T-Cell Lymphomas at stage IV-B (24 tumors plus spleen and il...

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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    11 months ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Pralatrexate, a more potent cousin of Methotrexate. Grade 3 oral mucositis. PET/CT showed disease progression.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    11 months ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Back on Belinostat. PET/CT showed disease progression.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    11 months ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had a single infusion of Belinostat (Beleodaq), but stopped it to enter a clinical trial.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    11 months ago
    po18guy's Avatar

    Cancer is back/Recurred

    Oh No

    Relapse also showed that it had mutated into two types of T-Cell Lymphoma: PTCL-NOS as well as AITL. WE increased the dosage of romi...

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    • kicks
    • Experience with Follicular Lymphoma
    11 months ago
    kicks' Avatar

    Just Diagnosed

    Oh No

    I was shocked about my diagnoses. The docs moved very quick with tests, getting the port in and scheduling chemo.

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    • kicks
    • Experience with Follicular Lymphoma
    11 months ago
    kicks' Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I find it hard to believe no pain meds are given for recovery--even just a day's worth. Tylenol just took the edge off the pain. I...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • kicks
    • Experience with Follicular Lymphoma
    11 months ago
    kicks' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo begins on Aug 6th!

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Kal
    • Experience with Mantle Cell Lymphoma
    11 months ago
    Kal's Avatar

    When to start treatment.

    Decision Point

    Diagnosed August 2017. Likely I had MCL for a couple of years prior. First treatment February 15, 2019. B/R for 4-6 months. If I...

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    • Debech
    • Experience with Mantle Cell Lymphoma
    11 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    My husband just completed his 1st round of chemo-Bendeka and immunotherapy-Rituxan. He was really tired after yesterday, took 6 hrs....

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • SueRose
    • Experience with Nodal Marginal Zone B-...
    11 months ago
    SueRose's Avatar

    The gym

    Other Care

    After a year of working I am finally able to get back to the gym. It has taken this long for my muscle pain to go down and be able t...

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