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Stem cell transplant. We had exhausted all lymphoma drugs and after two relapses and a muation/transformation, the liklihood of relapse was great.
Decision Point
0 CommentsIn 2009, there was no match found for a transplant in the world donor registry. In 2015, there was still no match. No siblings. My t...
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A trial was created solely for my case. "TEC" Treanda (Bendamustine), Etoposide and Carboplatin.
Clinical Trial
0 CommentsThis combination was stunningly effective. It eliminated two aggressive T-Cell Lymphomas at stage IV-B (24 tumors plus spleen and il...
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Chemotherapy
Drug or Chemo Therapy
Pralatrexate, a more potent cousin of Methotrexate. Grade 3 oral mucositis. PET/CT showed disease progression.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Chemotherapy
Drug or Chemo Therapy
Back on Belinostat. PET/CT showed disease progression.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Chemotherapy
Drug or Chemo Therapy
Had a single infusion of Belinostat (Beleodaq), but stopped it to enter a clinical trial.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Cancer is back/Recurred
Oh No
0 CommentsRelapse also showed that it had mutated into two types of T-Cell Lymphoma: PTCL-NOS as well as AITL. WE increased the dosage of romi...
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Just Diagnosed
Oh No
0 CommentsI was shocked about my diagnoses. The docs moved very quick with tests, getting the port in and scheduling chemo.
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Implant chemotherapy port
Procedure or Surgery
I find it hard to believe no pain meds are given for recovery--even just a day's worth. Tylenol just took the edge off the pain. I...
0 CommentsWent as Expected: Neutral/NA Minimal Recovery: Disagree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Neutral/NA -
Chemotherapy
Drug or Chemo Therapy
Chemo begins on Aug 6th!
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
When to start treatment.
Decision Point
0 CommentsDiagnosed August 2017. Likely I had MCL for a couple of years prior. First treatment February 15, 2019. B/R for 4-6 months. If I...
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Chemotherapy
Drug or Chemo Therapy
My husband just completed his 1st round of chemo-Bendeka and immunotherapy-Rituxan. He was really tired after yesterday, took 6 hrs....
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
The gym
Other Care
0 CommentsAfter a year of working I am finally able to get back to the gym. It has taken this long for my muscle pain to go down and be able t...
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