• dhtdiver
    • Experience with Brain and Spinal Cord...
    over 3 years ago
    dhtdiver's Avatar

    Anniversary

    Celebration

    Just got the results of mt Semi-Annual Brain Scan MRI following up on the CNS Lymphoma brain tumor from Oct 2009...all clear, stable...

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    1 Comment
    • RissaRooXx
    • Experience with Intermediate-Grade ...
    over 3 years ago
    RissaRooXx's Avatar

    Seizures

    Side Effects

    New diagnosis of post radiation epilepsy

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    0 Comments
    • RissaRooXx
    • Experience with Intermediate-Grade ...
    over 3 years ago
    RissaRooXx's Avatar

    External radiation

    Radiation

    Proton Therapy. Spots of hair loss, minimal side effects during treatment but a long term impact, as expected, from tissue scarring ...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • RissaRooXx
    • Experience with Intermediate-Grade ...
    over 3 years ago
    RissaRooXx's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Temodar and Avastin, minimal side effects.

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  1. over 3 years ago
    Kellyjhsmith's Avatar

    Other

    Oh No

    Dianosed 5.11.2015

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    0 Comments
    • aschaaf
    • Experience with High-Grade Astrocytoma...
    over 3 years ago
    aschaaf's Avatar

    Lost loved one

    Loss

    My husband had GBM and passed away April 8, 2016 after almost 3 years of fighting.

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    0 Comments
  2. over 3 years ago
    Tinabricker's Avatar

    High blood pressure (hypertension)

    Side Effects

    Went to heart doctor who was no help because he said since I didn't have it written down, how cold he help him? Come back in 2 months.

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    0 Comments
  3. over 3 years ago
    Tinabricker's Avatar

    External radiation

    Radiation

    Very tired, confused

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • schmooze
    • Experience with Brain and Spinal Cord...
    over 3 years ago
    schmooze's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    First session completed. Not feeling all that bad. Tired after the chemo sessions but feeling good in that week.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • schmooze
    • Experience with Brain and Spinal Cord...
    over 3 years ago
    schmooze's Avatar

    Surgery

    Procedure or Surgery

    Biopsy time. Time to see what these suckers are made of. Quick biospy of the tumour located in my ventricle and have a ventricle res...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • schmooze
    • Experience with Brain and Spinal Cord...
    over 3 years ago
    schmooze's Avatar

    Breakthrough

    Celebration

    They found them. Struggling through un-diagnosed diabetes incipitus, losing 17KG over the space of a year, losing my mind over what ...

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    0 Comments
  4. over 3 years ago
    Tinabricker's Avatar

    Money

    Oh No

    Surprised by how much money or out-of-pocket we will be responsible for.

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    0 Comments
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