1. over 4 years ago
    Butterflylade's Avatar

    Remission

    Celebration

    1st I was going into New York City to Columbia Presbytarian Hospital to get on a Lung Transplant List due to my lung disease when on...

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    1 Comment
  2. almost 5 years ago
    akristine's Avatar

    Cancer is back/Recurred

    Oh No

    My liposarcoma hasn't returned but after a routine mammogram two weeks ago, an ultrasound and biopsy, I now have ductal carcinoma in...

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    1 Comment
    • mudbug365
    • Experience with Sarcoma - Adult Soft...
    almost 5 years ago
    mudbug365's Avatar

    Mouth dryness

    Side Effects

    Along with a few other problems

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    0 Comments
    • mudbug365
    • Experience with Sarcoma - Adult Soft...
    almost 5 years ago
    mudbug365's Avatar

    Money

    Oh No

    Are you sure oh no

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    0 Comments
  3. almost 5 years ago
    chaostocalm's Avatar

    Drug or Chemo Therapy

    I'm on Votrient, have been for 2 1/2 years. Just had another tumor removed, back on Votrient. Doctors say nothing else to do and r...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    almost 5 years ago
    AlanGK's Avatar

    tumor was 99% necrotic at surgery

    Celebration

    scans are clear 12 months post surgery

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    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    almost 5 years ago
    AlanGK's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Finished aggressive chemo earlier this year, but still on heavy doses of pain meds. Hate chemo brain and pain med brain. Started wit...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    almost 5 years ago
    AlanGK's Avatar

    left internal hemi-pelvectomy

    Procedure or Surgery

    hemi-pelvoctomy with reconstruction using fibula

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • deverd
    • Experience with Sarcoma - Adult Soft Ti...
    about 5 years ago
    deverd's Avatar

    Health insurance issue

    Oh No

    Still waiting for insurance to approve treatment.

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    0 Comments
    • howie0718
    • Experience with Sarcoma - Adult Soft...
    about 5 years ago
    howie0718's Avatar

    Cancer is back/Recurred

    Oh No

    As of date have had total of 8 lung surgeries, last one in Feb of 2014, then 6 weeks of radiation on lung and lymphnodes in chest

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    2 Comments
    • howie0718
    • Experience with Sarcoma - Adult Soft...
    about 5 years ago
    howie0718's Avatar

    new drug

    Clinical Trial

    Cancer returned in lung, was dropped from trial

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    0 Comments
    • howie0718
    • Experience with Sarcoma - Adult Soft...
    about 5 years ago
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