• Lonning36
    • Experience with Angiosarcomas, Sarcoma
    almost 5 years ago
    Lonning36's Avatar

    Cancer Diagnosis

    Oh No

    My dad was finally diagnosed with Angiosarcoma in Nov. 2014 at KU Medical Center in Kansas City. His angiosarcoma is in the blood ve...

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    0 Comments
    • Lonning36
    • Experience with Angiosarcomas, Sarcoma
    almost 5 years ago
    Lonning36's Avatar

    Misdiagnosed

    Oh No

    My dad's angiosarcoma went undiagnosed for 3 or 4 years. Dermatologists thought it was purpura, which is just bruising and thinning ...

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    0 Comments
    • jerri
    • Experience with Spindle Cell Tumor
    almost 5 years ago
    jerri's Avatar

    total surprise.

    Oh No

    thought i was going in for surgery for a vocal cord lesion and a few days before my follow up appointment. i got a call from my doct...

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    0 Comments
    • kandtw
    • Experience with Synovial Sarcoma, Adult...
    about 5 years ago
    kandtw's Avatar

    Other

    Drug or Chemo Therapy

    Chemobrain, pain management, bladder protectants, and life management.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  1. about 5 years ago
    wrightboky's Avatar

    External radiation

    Radiation

    My husband has no energy, feels nausea, no appetite, trouble sleeping, horrific pain(ER 2xs)AND we have only completed 5 treatments!...

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • kandtw
    • Experience with Synovial Sarcoma, Adult...
    about 5 years ago
    kandtw's Avatar

    Money

    Oh No

    With copays, food while out of town, gas to and from all the DR's visits, hospital stays, and loss of work from both of us, we are b...

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    0 Comments
    • kandtw
    • Experience with Synovial Sarcoma, Adult...
    about 5 years ago
    kandtw's Avatar

    Other

    Drug or Chemo Therapy

    They are hitting him with two different chemos. Hospitalized four days to receive them both. Then three weeks later he will go in ag...

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    Easy to Do: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • kandtw
    • Experience with Synovial Sarcoma, Adult...
    about 5 years ago
    kandtw's Avatar

    Other

    Oh No

    Like we were handed his death certificate.

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    0 Comments
  2. about 5 years ago
    Motherlagoose's Avatar

    Problem with doctor

    Oh No

    My g/f's doctor will not accept her insurance . They want to remove her leg because of the sarcoma (soft tissue) in her leg. The doc...

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    1 Comment
    • Jennii
    • Experience with Sarcoma - Adult Soft Ti...
    about 5 years ago
    Jennii's Avatar

    Lost loved one

    Loss

    My son Joseph was diagnosed in January 2010 with right thigh sarcoma and passed away February 2013 at age 20.

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    1 Comment
    • Linbar
    • Experience with Sarcoma - Adult Soft Ti...
    about 5 years ago
    Linbar's Avatar

    Surgery

    Procedure or Surgery

    I had surgery on Oct. 2014 to remove a liposarcome from my gluteal area. It was less than 5cm and the surgeon got clean margins. How...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Desera09
    • Experience with Sarcoma - Adult Soft ...
    about 5 years ago
    Desera09's Avatar

    Surgery

    Procedure or Surgery

    March 5th 2015 I had an outpatient surgery to remove my left 4th toe and its bones.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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