• mudbug365
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
    mudbug365's Avatar

    Mouth dryness

    Side Effects

    Along with a few other problems

    Read More

    0 Comments
    • mudbug365
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
    mudbug365's Avatar

    Money

    Oh No

    Are you sure oh no

    Read More

    0 Comments
  1. over 4 years ago
    chaostocalm's Avatar

    Drug or Chemo Therapy

    I'm on Votrient, have been for 2 1/2 years. Just had another tumor removed, back on Votrient. Doctors say nothing else to do and r...

    Read More

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    over 4 years ago
    AlanGK's Avatar

    tumor was 99% necrotic at surgery

    Celebration

    scans are clear 12 months post surgery

    Read More

    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    over 4 years ago
    AlanGK's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Finished aggressive chemo earlier this year, but still on heavy doses of pain meds. Hate chemo brain and pain med brain. Started wit...

    Read More

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    over 4 years ago
    AlanGK's Avatar

    left internal hemi-pelvectomy

    Procedure or Surgery

    hemi-pelvoctomy with reconstruction using fibula

    Read More

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • deverd
    • Experience with Sarcoma - Adult Soft Ti...
    almost 5 years ago
    deverd's Avatar

    Health insurance issue

    Oh No

    Still waiting for insurance to approve treatment.

    Read More

    0 Comments
    • howie0718
    • Experience with Sarcoma - Adult Soft...
    almost 5 years ago
    howie0718's Avatar

    Cancer is back/Recurred

    Oh No

    As of date have had total of 8 lung surgeries, last one in Feb of 2014, then 6 weeks of radiation on lung and lymphnodes in chest

    Read More

    2 Comments
    • howie0718
    • Experience with Sarcoma - Adult Soft...
    almost 5 years ago
    howie0718's Avatar

    new drug

    Clinical Trial

    Cancer returned in lung, was dropped from trial

    Read More

    0 Comments
    • howie0718
    • Experience with Sarcoma - Adult Soft...
    almost 5 years ago
    • howie0718
    • Experience with Sarcoma - Adult Soft...
    almost 5 years ago
    howie0718's Avatar

    External radiation

    Radiation

    8 weeks

    Read More

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • howie0718
    • Experience with Sarcoma - Adult Soft...
    almost 5 years ago
    howie0718's Avatar

    Surgery

    Procedure or Surgery

    Removed inside muscle of my calf

    Read More

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. 7
  8. 9
  9. 11
  10. 12
  11. 13
  12. 14
  13. 83
  14. 84