• Mprude20
    • Experience with Nodular sclerosing
    over 4 years ago
    Mprude20's Avatar

    Hair loss (alopecia)

    Side Effects

    I will shave my head on June 27 2015

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    0 Comments
  1. over 4 years ago
    MonneLove's Avatar

    Medicine for low white blood cell count

    Drug or Chemo Therapy

    Had to begin Neupogen injections..I say easy to do because I had my brother here to give them to me so that didn't need to stick mys...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. over 4 years ago
    MonneLove's Avatar

    Home care

    Other Care

    I have labs drawn here at home 2x a week.

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    0 Comments
  3. over 4 years ago
    MonneLove's Avatar

    Nausea/Vomiting

    Side Effects

    On about day 3 or 4 following treatment, I have experienced some nausea with minimal vomiting (woke me out of my sleep :( ). Now hav...

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    0 Comments
  4. over 4 years ago
    MonneLove's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have had only 1 bad reaction of "riders" (uncontrollable shivering) after my initial dose that had to be calmed with injection of ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. over 4 years ago
    MonneLove's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    My port was very tender for a few weeks and it took even longer for all stitches to dissolve..but it's better than being poked in ar...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    1 Comment
  6. over 4 years ago
    Heidi-Illinois' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    No bad side effects so far. Just a sore jaw

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Mprude20
    • Experience with Nodular sclerosing
    over 4 years ago
    Mprude20's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    ABVD KINDA SUCKS.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • Outlier
    • Experience with Classic Hodgkin Disease
    over 4 years ago
    Outlier's Avatar

    Birth

    Celebration

    On 11-20-14, our very first grandchild was born. Gift of life! On August 27th, 2017 our second grandchild was born.

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    1 Comment
  7. over 4 years ago
    Augustalee's Avatar

    chemo

    Clinical Trial

    I was offered to partake in a study of A+AVD vs. ABVD standard treatment. I'm not sure which I'll be included in yet, Arm A or Arm B.

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    0 Comments
  8. over 4 years ago
    Augustalee's Avatar

    bone marrow biopsy

    Procedure or Surgery

    Had a wonderful NP do the procedure, but couldn't get a core sample despite going in twice. Only a scrape was done, and couldn't giv...

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    Went as Expected: Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. over 4 years ago
    Augustalee's Avatar

    PET and CT scan

    Procedure or Surgery

    PET and CT shows Stage 3 Hodgkin's. Hot spots are in my throat/neck, chest and retroperitoneal nodes. Not bulky disease, but several...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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