1. almost 4 years ago
    MonneLove's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    My port was very tender for a few weeks and it took even longer for all stitches to dissolve..but it's better than being poked in ar...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    1 Comment
  2. about 4 years ago
    Heidi-Illinois' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    No bad side effects so far. Just a sore jaw

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Mprude20
    • Experience with Nodular sclerosing
    about 4 years ago
    Mprude20's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    ABVD KINDA SUCKS.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 4 years ago
    Outlier's Avatar

    Birth

    Celebration

    On 11-20-14, our very first grandchild was born. Gift of life! On August 27th, 2017 our second grandchild was born.

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    1 Comment
  3. about 4 years ago
    Augustalee's Avatar

    chemo

    Clinical Trial

    I was offered to partake in a study of A+AVD vs. ABVD standard treatment. I'm not sure which I'll be included in yet, Arm A or Arm B.

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    0 Comments
  4. about 4 years ago
    Augustalee's Avatar

    bone marrow biopsy

    Procedure or Surgery

    Had a wonderful NP do the procedure, but couldn't get a core sample despite going in twice. Only a scrape was done, and couldn't giv...

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    Went as Expected: Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. about 4 years ago
    Augustalee's Avatar

    PET and CT scan

    Procedure or Surgery

    PET and CT shows Stage 3 Hodgkin's. Hot spots are in my throat/neck, chest and retroperitoneal nodes. Not bulky disease, but several...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. about 4 years ago
    Augustalee's Avatar

    Biopsy on mass in my neck

    Procedure or Surgery

    Biopsy came back positive for Lymphoma

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  7. about 4 years ago
    Augustalee's Avatar

    Misdiagnosed

    Oh No

    Found the first lump...no one would take my insurance. Went to the ER, they drew blood and did a chest x-ray. "Oh your white cell co...

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    1 Comment
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 4 years ago
    Outlier's Avatar

    Surgery

    Procedure or Surgery

    Aortic Heart Valve replaced: 12-10-14.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    2 Comments
  8. about 4 years ago
    CourtneyDoug's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Since he is participating in a clinical study, the study medication gives him severe nerve damage. With time his oncologist believes...

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    1 Comment
  9. about 4 years ago
    CourtneyDoug's Avatar

    Cancer is back/Recurred

    Oh No

    About 30 days ago we received our PET scan results and the Hodgkin's Lymphoma is back in a new area. I also have a tumor in my thyro...

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    0 Comments
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