• LaurenInLA
    • Experience with Myelodysplastic Syn...
    about 1 month ago
    LaurenInLA's Avatar

    Drug or Chemo Therapy

    Oncologist prescribed Hydroxyurea. I started with 2 pills per day. After 1 month, the dosage was reduced to 1 pill per day. I am ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • SurvivorAZ
    • Experience with Myelodysplastic Syn...
    over 2 years ago
    SurvivorAZ's Avatar

    Removal of port due to an nifection

    Procedure or Surgery

    My port became infected about 2 months ago. My doctor tried massive doses of antibiotics but they didn't work. So off to the surgeo...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • bbane1970
    • Experience with Myelodysplastic Synd...
    over 4 years ago
    bbane1970's Avatar

    Diagnosed

    Oh No

    Hi, I was diagnosed with MDS 2 weeks ago...I guess I will probably be having a few questions. Any experience/wisdom is welcome. Thanks

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    0 Comments
    • merry
    • Experience with Myelodysplastic Syndrome...
    over 4 years ago
    merry's Avatar

    Initial Diagnosis...

    Symptoms

    In 2009 I was referred to an Oncologist after 3 years of low blood count/anemia. Nothing helped. I had a BMB and it was discovere...

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    1 Comment
  1. over 4 years ago
    rosepetals123's Avatar

    Drug or Chemo Therapy

    Oral chemo to bring down severely hight platelets.,

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. over 4 years ago
    rosepetals123's Avatar

    Tired, severe pain, enemic

    Side Effects

    Not a fun disease... Waiting for transplant until my adrenal system started to shut down, now I'm on hospice.

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    0 Comments
    • maryl
    • Experience with Myelodysplastic Syndrome...
    over 4 years ago
    maryl's Avatar

    Vidaza, 7 days in March 2014, & undergoing now in April 2014

    Drug or Chemo Therapy

    Totally hubby's decision, we can stand & fight, or we can go to New Orleans one last time...roll of the dice...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • maryl
    • Experience with Myelodysplastic Syndrome...
    over 4 years ago
  3. almost 5 years ago
    exlibris0201's Avatar

    Bone Marrow Donor Found

    Celebration

    I just got the great news that they have found a bone marrow donor match!! I am so excited!

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    0 Comments
  4. almost 5 years ago
    VickieGelso's Avatar

    Milestones

    In remission as of a few months now, and at Dr. appt on the 31st, many of my isolation restrictions have been lifted...I can now go ...

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    1 Comment
  5. almost 5 years ago
    exlibris0201's Avatar

    Dacogen

    Drug or Chemo Therapy

    I have the usual side effects like nausea and heartburn. My eyesight will get blurry after a few days into the treatment as well. ...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. almost 5 years ago
    exlibris0201's Avatar

    Oh No

    Diagnosed in August 2013. They couldn't figure out what was wrong with me for the longest time. At first they thought I was bitten...

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    0 Comments
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