• Nostho
    • Experience with Brain and Spinal Cord T...
    2 months ago
    Nostho's Avatar

    Crianotomy

    Procedure or Surgery

    I did surgery in June then my right side became weak and I went to the rehab. In September I did radiation. I didn't experience not...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Rachael58
    • Experience with High-Grade Astrocyto...
    3 months ago
    Rachael58's Avatar

    Had a seizure in my sleep beginning of October

    Oh No

    CT scan and MRI show a change, not certain if it is a recurrence or scar tissue that caused a seizure.

    Read More

    0 Comments
  3. 7 months ago
    TexFletch's Avatar

    Just Diagnosed

    Oh No

    I was diagnosed in Malaysia after my company ordered an MRI when I was picked up having a seizure in the KLCC shopping mall. I gener...

    Read More

    0 Comments
  4. 9 months ago
    SINCERE08's Avatar

    Surgery

    Procedure or Surgery

    My surgery went as expected. I have some side effects that affect my daily living.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. 9 months ago
    SINCERE08's Avatar

    Just Diagnosed

    Oh No

    When diagnosed I could not believe it was happening to me at the age of 12 in the 6th grade.

    Read More

    0 Comments
    • Sdiaz303
    • Experience with High-Grade Astrocytom...
    9 months ago
    Sdiaz303's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    Starting to take fda aproved drugs to fight cancer. Using thc, ozone therapy oxygen therapy any and all available

    Read More

    0 Comments
    • acdotzler
    • Experience with High-Grade Astrocyto...
    10 months ago
    acdotzler's Avatar

    Memory changes

    Side Effects

    memory problems, fatigue, strokes

    Read More

    0 Comments
    • andreajd
    • Experience with Brain and Spinal Cord...
    10 months ago
    andreajd's Avatar

    Cancer has spread/Metastasized

    Oh No

    Broca in brain. 2018. Frontal lobe 2019

    Read More

    0 Comments
    • Beamer
    • Experience with High-Grade Astrocytoma ...
    11 months ago
    Beamer's Avatar

    Surgery

    Procedure or Surgery

    Surgery, although necessary, had complications/bleeding, and because of the deep location of the tumor caused more swelling and reco...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • SSmith5780
    • Experience with Low-grade Astrocytoma
    11 months ago
    SSmith5780's Avatar

    Oncologist / Radiologist Appointments

    Other Care

    I just had my first appointment with the Oncologist and have my first meeting with the Radiologist next week. I'm told I'll have 6 w...

    Read More

    0 Comments
    • SSmith5780
    • Experience with Low-grade Astrocytoma
    11 months ago
    SSmith5780's Avatar

    Stitches started dissolving to quick.

    Oh No

    I had my follow up from Surgery on a Tuesday and the Surgeon said everything looked great and was pleased. Wednesday, I was sitting ...

    Read More

    0 Comments
    • SSmith5780
    • Experience with Low-grade Astrocytoma
    11 months ago
    SSmith5780's Avatar

    Surgery

    Procedure or Surgery

    I had "Awake Brain Surgery" to remove as much as they could. I got really sick during surgery and the first 12 hours after surgery. ...

    Read More

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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