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- alishawith4
- Experience with Medulloblastoma
cartcells for solid tumor
Clinical Trial
has anyone had any good or bad experience with this immunotherapy?
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- GBMsurvivordad
- Experience with High-Grade Astr...
lifetime caregiver required
Other Care
Mom did it dad worked, dad has heart attacks- no more work, mom passes away, older sister takes over caregiving (room and board with...
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- GBMsurvivordad
- Experience with High-Grade Astr...
to treat or not to
Decision Point
we were given the choice...."prolong the inevitable , quality of life, maybe new treatments in 5 years...if she lasts that long
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- GBMsurvivordad
- Experience with High-Grade Astr...
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- GBMsurvivordad
- Experience with High-Grade Astr...
Chemotherapy
Drug or Chemo Therapy
Temodar- 1st child to receive in US
Easy to Do: Neutral/NA Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
- GBMsurvivordad
- Experience with High-Grade Astr...
Surgery
Procedure or Surgery
GBM confirmed...4 surgeries....80% right brain removed
Went as Expected: Disagree Minimal Recovery: Disagree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree -
- GBMsurvivordad
- Experience with High-Grade Astr...
Just Diagnosed
Oh No
collapsed at school 7yrs old..... mom took home......temp dropping..calls dr....no worry......calls dad at work....dad say go to er....
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- GBMsurvivordad
- Experience with High-Grade Astr...
External radiation
Radiation
the side effects still showing up 17 years later
Painless Experience: Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
- LindaPrescott
- Experience with Low-grade Astroc...
CAM (Complementary and Alternative Medicine)
Other Care
Acupuncture for anxiety, nausea, facial neuralgia, fibromyalgia.
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- LindaPrescott
- Experience with Low-grade Astroc...
Finished treatment
Celebration
No growth in the lesion. Limited side effects from the lesion.
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- LindaPrescott
- Experience with Low-grade Astroc...
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- LindaPrescott
- Experience with Low-grade Astroc...
Chemotherapy
Drug or Chemo Therapy
Fatigue was bad
Easy to Do: Strongly Agree Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Disagree
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