• Sasukesuma
    • Experience with Fallopian Tube Cancer
    6 months ago
    Sasukesuma's Avatar

    Shortness of breath

    Side Effects

    Though it is hard to say sometimes if this is from the cancer or a-fib

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    6 months ago
    Sasukesuma's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    Insurance refuses to cover the shots they gave me for this.

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    6 months ago
    Sasukesuma's Avatar

    Depression/Anxiety

    Side Effects

    Who doesn’t with cancer

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    6 months ago
    Sasukesuma's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    On two occasions I had blood transfusions.

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    6 months ago
    Sasukesuma's Avatar

    Allergic reaction

    Side Effects

    Allergic reaction during first chemo infusion. Flushing, difficulty breathing. They immediately stoped. The infusion and gave me dru...

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    6 months ago
    Sasukesuma's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had a reaction (flushing, trouble breathing) but with some adjustments and additional premeds I had minimal problems subsequently.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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    • goodkarma
    • Experience with Fallopian Tube Cancer
    6 months ago
    goodkarma's Avatar

    2/8/19 Followup after discharge- doctor/bloodwork

    Other Care

    Platelets had rebounded & were over 100. Nutrofils still low. Stay off Zejula, followup in 4 weeks, hoping nutrofils improve. The...

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    • goodkarma
    • Experience with Fallopian Tube Cancer
    6 months ago
    goodkarma's Avatar

    1/24/19 ER Visit, platelets down to 10!!!!

    Procedure or Surgery

    Noticed one arm was very swollen & blue (now I know it was spontaneous bleeding!), so off to the ER. Learned platelets dropped from...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • goodkarma
    • Experience with Fallopian Tube Cancer
    6 months ago
    goodkarma's Avatar

    1/21/19 Doctor appt/bloodwork

    Other Care

    Blood pressure AND pulse high(never an issue for me until Zejula). Platelets low, but doctor just wanted me to stop drug 1 week/com...

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    • goodkarma
    • Experience with Fallopian Tube Cancer
    6 months ago
    goodkarma's Avatar

    Maintenance or consolidation chemotherapy

    Drug or Chemo Therapy

    1/7/19 started Zejula 300mg daily, 3 pills- $19,000 pd by ins for ONE month! Felt AWFUL from the start! Heart racing/anxious 24/7,...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • goodkarma
    • Experience with Fallopian Tube Cancer
    6 months ago
    • goodkarma
    • Experience with Fallopian Tube Cancer
    6 months ago
    goodkarma's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    12/4/18 final chemo- yippee! Did the usual 3rd morning after plan to escape nausea- IV fluids, morphine & anti-nausea rx, but woke ...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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