• Sasukesuma
    • Experience with Fallopian Tube Cancer
    11 months ago
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    Shortness of breath

    Side Effects

    Though it is hard to say sometimes if this is from the cancer or a-fib

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    11 months ago
    Sasukesuma's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    Insurance refuses to cover the shots they gave me for this.

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    11 months ago
    Sasukesuma's Avatar

    Depression/Anxiety

    Side Effects

    Who doesn’t with cancer

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    11 months ago
    Sasukesuma's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    On two occasions I had blood transfusions.

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    11 months ago
    Sasukesuma's Avatar

    Allergic reaction

    Side Effects

    Allergic reaction during first chemo infusion. Flushing, difficulty breathing. They immediately stoped. The infusion and gave me dru...

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    • Sasukesuma
    • Experience with Fallopian Tube Cancer
    11 months ago
    Sasukesuma's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had a reaction (flushing, trouble breathing) but with some adjustments and additional premeds I had minimal problems subsequently.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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    • goodkarma
    • Experience with Fallopian Tube Cancer
    11 months ago
    goodkarma's Avatar

    2/8/19 Followup after discharge- doctor/bloodwork

    Other Care

    Platelets had rebounded & were over 100. Nutrofils still low. Stay off Zejula, followup in 4 weeks, hoping nutrofils improve. The...

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    • goodkarma
    • Experience with Fallopian Tube Cancer
    11 months ago
    goodkarma's Avatar

    1/24/19 ER Visit, platelets down to 10!!!!

    Procedure or Surgery

    Noticed one arm was very swollen & blue (now I know it was spontaneous bleeding!), so off to the ER. Learned platelets dropped from...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • goodkarma
    • Experience with Fallopian Tube Cancer
    11 months ago
    goodkarma's Avatar

    1/21/19 Doctor appt/bloodwork

    Other Care

    Blood pressure AND pulse high(never an issue for me until Zejula). Platelets low, but doctor just wanted me to stop drug 1 week/com...

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    • goodkarma
    • Experience with Fallopian Tube Cancer
    11 months ago
    goodkarma's Avatar

    Maintenance or consolidation chemotherapy

    Drug or Chemo Therapy

    1/7/19 started Zejula 300mg daily, 3 pills- $19,000 pd by ins for ONE month! Felt AWFUL from the start! Heart racing/anxious 24/7,...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • goodkarma
    • Experience with Fallopian Tube Cancer
    11 months ago
    • goodkarma
    • Experience with Fallopian Tube Cancer
    11 months ago
    goodkarma's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    12/4/18 final chemo- yippee! Did the usual 3rd morning after plan to escape nausea- IV fluids, morphine & anti-nausea rx, but woke ...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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