1. 2 months ago
    Browncl67's Avatar

    Just Diagnosed

    Oh No

    The day before my 52nd birthday my diagnosis of Hodgkins was confirmed. I am terrified and keep wondering how could his happen. I am...

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    0 Comments
    • Lupem
    • Experience with Hodgkin Disease
    3 months ago
    Lupem's Avatar

    External radiation

    Radiation

    Ay the very beginning of treatment I experienced dry mouth, sore throat and trouble swallowing food. I knew I would eventually have...

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • Lupem
    • Experience with Hodgkin Disease
    3 months ago
    Lupem's Avatar

    Spleen removed, carotid artery replacement,thyroid removed

    Procedure or Surgery

    My spleen was the first to go when I was first diagnosed. This caused me to have a very bad immune system. Years later I had my thyr...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • chinuk70
    • Experience with Hodgkin Disease
    4 months ago
    chinuk70's Avatar

    Breast tenderness or growth

    Side Effects

    More Health Issues due to past treatment. Radial scaring in the breast indication of much higher risk of breast cancer in already h...

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    0 Comments
    • chinuk70
    • Experience with Hodgkin Disease
    4 months ago
    chinuk70's Avatar

    New Health issues caused by Prior Treatment

    Side Effects

    Lost Thyroid due to prior radiation treatment. Mass on both sides extending below collar bone.

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    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    10 months ago
    Lolly916's Avatar

    Other

    Side Effects

    Thyroid tumors - watch and wait phase

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    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    10 months ago
    Lolly916's Avatar

    Skin changes

    Side Effects

    Recurring, radiation induced melanoma.

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    0 Comments
    • Roma
    • Experience with Hodgkin Disease
    11 months ago
    Roma's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am receiving only avd insurance doesn’t want to cover for brentuximab I had a reaction to bleomycin anybody there in the same situ...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Ashleybv
    • Experience with Classic Hodgkin Disease
    about 1 year ago
    Ashleybv's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Thurs Oct 4th: I was nervous pre-op. They sedated me and said I can nap, but I was stubborn and tried all my might to stay up (I was...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Ashleybv
    • Experience with Classic Hodgkin Disease
    about 1 year ago
    Ashleybv's Avatar

    Just Diagnosed

    Oh No

    September 2018: I had a fever after dinner but didn't know why. After I took ibuprofen and went to sleep, I woke up sweaty; bed was ...

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    0 Comments
  2. about 1 year ago
    2yearsncountn's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Had to have a 2 unit platelet transfusion at one after starting radiation.

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    0 Comments
  3. about 1 year ago
    2yearsncountn's Avatar

    External radiation

    Radiation

    I ended up with pneumonitis, either from chemo meds or radiation. I do not care. I AM A CANCER SURVIVOR

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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