• Lolly916
    • Experience with Hodgkin Disease
    6 months ago
    Lolly916's Avatar

    Other

    Side Effects

    Thyroid tumors - watch and wait phase

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    • Lolly916
    • Experience with Hodgkin Disease
    6 months ago
    Lolly916's Avatar

    Skin changes

    Side Effects

    Recurring, radiation induced melanoma.

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    0 Comments
    • Roma
    • Experience with Hodgkin Disease
    7 months ago
    Roma's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am receiving only avd insurance doesn’t want to cover for brentuximab I had a reaction to bleomycin anybody there in the same situ...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Ashleybv
    • Experience with Classic Hodgkin Disease
    9 months ago
    Ashleybv's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Thurs Oct 4th: I was nervous pre-op. They sedated me and said I can nap, but I was stubborn and tried all my might to stay up (I was...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Ashleybv
    • Experience with Classic Hodgkin Disease
    9 months ago
    Ashleybv's Avatar

    Just Diagnosed

    Oh No

    September 2018: I had a fever after dinner but didn't know why. After I took ibuprofen and went to sleep, I woke up sweaty; bed was ...

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    0 Comments
  1. 10 months ago
    2yearsncountn's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Had to have a 2 unit platelet transfusion at one after starting radiation.

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    0 Comments
  2. 10 months ago
    2yearsncountn's Avatar

    External radiation

    Radiation

    I ended up with pneumonitis, either from chemo meds or radiation. I do not care. I AM A CANCER SURVIVOR

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 10 months ago
    2yearsncountn's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    They told me I had a tough dosage for my chemo and they weren't sure I could do it. But I did, it kicked my butt for 11 days out of...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 10 months ago
    2yearsncountn's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I Love my Port..will keep it till I reach my 5 year mark, taking the time every 6 weeks for a port flush!

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. 10 months ago
    2yearsncountn's Avatar

    Health insurance issue

    Oh No

    I felt numb. Couldn't understand or process what was being said

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    0 Comments
    • ReneeBee
    • Experience with Hodgkin Disease
    11 months ago
    ReneeBee's Avatar

    External radiation

    Radiation

    burned my espghogus and made neck stiff

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • ReneeBee
    • Experience with Hodgkin Disease
    11 months ago
    ReneeBee's Avatar

    Medicine for low white blood cell count

    Drug or Chemo Therapy

    had to get Grantix shots 24 hr after chemo and for 5 days after. severe bone pain in jaws and chest

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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