1. about 4 years ago
    MeToo15's Avatar

    Surgery

    Procedure or Surgery

    The first day of surgery, June 5th, 2007, they fused my head down to C-4 and put me into ICU on the ventilator until the next mornin...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. about 4 years ago
    MeToo15's Avatar

    Alternative and diet

    Other Care

    I do not discuss what is working for me because so far the FDA has shut down the access to things that had been working for me. Thi...

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  3. about 4 years ago
    MeToo15's Avatar

    Celebration

    I celebrate the fact that I have experienced this "dreaded" disease, cancer. I have learned a lot about myself and because of the p...

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  4. about 4 years ago
    MeToo15's Avatar

    Side Effects

    The Photon and Proton initially did damage to one side of my salivary glands, but that has slowly returned over the years. (You do n...

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  5. about 4 years ago
    MeToo15's Avatar

    External radiation

    Radiation

    At that time, only Proton Therapy could "kill" a chordoma. On my 5 year exam, was told it was back....and was basically dismissed a...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  6. about 4 years ago
    MeToo15's Avatar

    Surgery

    Procedure or Surgery

    They fused my head down to C-4 the first day. The second day, they spent 10 hours "debulking" the tumor through my mouth.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. about 4 years ago
    MeToo15's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. about 5 years ago
    Anxious' Avatar

    Combination of Proton/Photon radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. about 5 years ago
    Anxious' Avatar

    Surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments