• TKRash
    • Experience with Systemic Lupus Erythema...
    6 months ago
    TKRash's Avatar

    Tissue biopsy

    Procedure or Surgery

    hard to numb, was deeper than the Dr thought and I lost a lot of blood and nearly died

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • TKRash
    • Experience with Systemic Lupus Erythema...
    6 months ago
    TKRash's Avatar

    Lumbar puncture

    Procedure or Surgery

    I was hard to numb

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • TKRash
    • Experience with Systemic Lupus Erythema...
    6 months ago
    TKRash's Avatar

    Relationship issues

    Oh No

    Husband couldn't deal with it so he filed for divorce

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    0 Comments
    • TKRash
    • Experience with Systemic Lupus Erythema...
    6 months ago
    TKRash's Avatar

    Problem with doctor

    Oh No

    Dr. came in said I had lupus and was going to be dead in less than 2 years and to make my funeral arrangements, This was the same da...

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    1 Comment
    • jessica317
    • Experience with Discoid Lupus Eryth...
    10 months ago
    jessica317's Avatar

    Arthritis

    Side Effects

    Anemia, weight gain, hbp, weakened bones, hair loss

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    0 Comments
    • jessica317
    • Experience with Discoid Lupus Eryth...
    10 months ago
    jessica317's Avatar

    Imuran (azathioprine)

    Drug Therapy or Medication

    Plaquenil, cymbalta

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    0 Comments
    • jessica317
    • Experience with Discoid Lupus Eryth...
    10 months ago
    jessica317's Avatar

    Bone pain

    Symptoms

    Heart disease, anemia, hbp, antiphosphlipid, start of kidney disease

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    0 Comments
  1. 12 months ago
    Annabelle1967's Avatar

    Deltasone (prednisone)

    Drug Therapy or Medication

    No RELIEF

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    0 Comments
  2. 12 months ago
    Annabelle1967's Avatar

    Physical Therapy

    Other Care

    It's every day all day n night. I usually average about 15 hours of sleep a week.

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    0 Comments
  3. 12 months ago
    Annabelle1967's Avatar

    Injections in lower back (NO RELIEF AT ALL)

    Procedure or Surgery

    I've had steroid injections, epidural blocks, and Rhyzodtomy (Where they burn the nerve ending)

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. over 3 years ago
    immunewarrior's Avatar

    Azasan (azathioprine)

    Drug Therapy or Medication

    here come the drugs- these drugs are really for other conditions but its all we have to help with the symptoms- we gonna try till we...

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    0 Comments
  5. over 3 years ago
    immunewarrior's Avatar

    Diagnosed

    Oh No

    Mixed emotions as I was so happy that finally someone found out what was wrong with me but then I was sad, scared, and unsure about ...

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    0 Comments
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