• Baron
    • Experience with Ulcerative Colitis
    about 1 year ago
    Baron's Avatar

    Proctocolectomy with creation of ileo-anal pouch (ileal pouch-anal anastomosis IPAA, restorative proctocolectomy, ileal-anal pullthrough, j-pouch, s-pouch, w-pouch, internal pouch)

    Procedure or Surgery

    My story is something from a Stephen King novel, but we all have our woes to carry in this existence. I had Ulcerative Colitis for o...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • passer
    • Experience with Ulcerative Colitis
    over 2 years ago
    passer's Avatar

    Asacol (mesalamine)

    Drug Therapy or Medication

    Switched to Azacol due to pancolitis

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    • passer
    • Experience with Ulcerative Colitis
    over 2 years ago
    passer's Avatar

    Asacol (mesalamine)

    Drug Therapy or Medication

    Actually Colazal first, but it wasn't an option in the pulldown menu.

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  1. over 3 years ago
    cdouglas1999's Avatar

    Diagnosed

    Oh No

    3 months ago I was diagnosed with pernicious anemia: B12 deficiency coupled with depletion of intrinsic factor necessary for GI trac...

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  2. over 3 years ago
    digger6218's Avatar

    Asacol (mesalamine)

    Drug Therapy or Medication

    This med is helping

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  3. over 3 years ago
    digger6218's Avatar

    Diagnosed

    Oh No

    Symptoms started that led to diagnosis started just before Thanksgiving 2013. I have had digestive issues since I was 20. This was d...

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  4. over 3 years ago
    ShannonVan's Avatar

    Remicade (infliximab)

    Drug Therapy or Medication

    In February 2014 I started Remicade. It has been my "miracle mouse juice"

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  5. over 3 years ago
    ShannonVan's Avatar

    Resection

    Procedure or Surgery

    Once the fistulas and abcesses were dealt with, I felt much better.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  6. over 3 years ago
    ShannonVan's Avatar

    Hospitalization

    Other Care

    I was hospitalized for 78 days in October 2013

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  7. over 3 years ago
    ShannonVan's Avatar

    Pentasa (mesalamine)

    Drug Therapy or Medication

    It made me MORE nauseous. I continued to have pain. Couldnt keep it or anything else down.

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  8. over 3 years ago
    ShannonVan's Avatar

    Diagnosis

    Milestones

    After months, really years of baffling symptoms, I got my diagnosis

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  9. over 3 years ago
    ShannonVan's Avatar

    Abdominal pain

    Symptoms

    In fall of 2012 I started having nausea, severe abdominal pain, and diarrhea. I also was losing weight at an alarming rate, but as I...

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    0 Comments
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