• Hilkei
    • Experience with Mantle Cell Lymphoma
    10 days ago
    Hilkei's Avatar

    Health insurance issue

    Oh No

    January 10, 2018. Since PET Scan on December 21, 2017 (and yes, I know it's the holidays ...) can't get authorization for the chemo...

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    0 Comments
    • Hilkei
    • Experience with Mantle Cell Lymphoma
    10 days ago
    Hilkei's Avatar

    Cancer is back/Recurred

    Oh No

    December 21, 2017. PET Scan shows return of (Indolent) Mantle Cell Lymphoma. Rare cancer. Generally in men. Why am I so lucky?

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    0 Comments
  1. 24 days ago
    WoodsRLovely's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    In addition to the normal ABVD that is given to lymphoma patients, I am now doing Brentuximab chemo to prep me for stem cell transpl...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. about 1 month ago
    WendyShores' Avatar

    Cancer is back/Recurred

    Oh No

    Noticed an incredible exhaustion recurring this past March or April. Told my oncologist I could tell I was coming out of remission. ...

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    0 Comments
    • stevent
    • Experience with Adenocarcinoma, Lung C...
    about 1 month ago
    stevent's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had a scare with my scans in November, 2017. Looked like some new mets/some growing again. Did a PET scan on 12/4/17, and Dr. said...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Journey
    • Experience with Bronchioloalveolar Car...
    about 1 month ago
    Journey's Avatar

    What treatment should/could I have? What are my chances of survival?

    Decision Point

    I had many scans to determine where the cancer may have gone. The PET scan showed possible cancer in several of my bones. But MRI ...

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    1 Comment
  3. about 1 month ago
    WoodsRLovely's Avatar

    Cancer is back/Recurred

    Oh No

    After 8 treatments/4 course of classic chemo for Hodgkin's Lymphoma (stage 2A), we did a third PET scan and found activity in the se...

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    0 Comments
  4. about 1 month ago
    WoodsRLovely's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was diagnosed with Hodkin's Lymphoma in June 2017. After 6 treatements of the ABVD regimen, I had a PET scan which showed one tum...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Pmoos
    • Experience with Diffuse Large B-Cell Lym...
    2 months ago
    Pmoos' Avatar

    Finished treatment

    Celebration

    PET scan showed no cancer cells. Doctor said I was in complete remission!!

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    0 Comments
    • Teelee3
    • Experience with Adenocarcinoma, Colore...
    3 months ago
    Teelee3's Avatar

    Cancer is back/Recurred

    Oh No

    At my follow up CT scan after surgery to remove a liver tumour last March another lesion was found. I'm going for a PET scan and the...

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    0 Comments
  5. 3 months ago
    LiveWithCancer's Avatar

    Celebration

    Five years!!! I didn't really expect that i would actually make it, but i did!! Five years ago, i went to see Dr Donna Casey to f...

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    2 Comments
    • Pablo
    • Experience with Squamous Cell Carcinoma,...
    3 months ago
    Pablo's Avatar

    Celebration

    My 4th PET/CT scan since starting immunotherapy 14 months ago again detected no cancer. As usual, there was great anxiety leading up...

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    0 Comments
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