1. about 7 years ago
    VickieGelso's Avatar

    Returned to work, post bone marrow transplant?

    Here are my worries. I am currently on medical disability, since 2012, after BMT done. I have ... Read More

    2 Answers - Answer -
  2. about 8 years ago
    VickieGelso's Avatar
  3. about 8 years ago
    VickieGelso's Avatar

    Thanksgiving prayer to God...

    Celebration

    Celebrating one year post bone marrow transplant and engraftment 100% of donor cells, with no signs of disease noted! Still have a ...

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    0 Comments
  4. about 8 years ago
    VickieGelso's Avatar

    Chemotherapy with an IV infusion

    Drug or Chemo Therapy

    It also helps if you have a port inserted surgically, as it saves you many pokes for treatments or blood tests...I had chemotherapy ...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. about 8 years ago
    VickieGelso's Avatar

    have Jak 2 mutation with the mds, and myeloproliferative disease as well.

    Oh No

    When I was diagnosed in May 2010, bone marrow biopsy showed not only mds, but Jak 2 present, which is a rare complication assoc with...

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    1 Comment
  6. about 8 years ago
    VickieGelso's Avatar

    procrit, subcutaneously every week

    Drug or Chemo Therapy

    About middle of treatment in 2011, started procrit injections to raise hemoglobin levels. These were subcutaneous injections once a ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    2 Comments
  7. almost 8 years ago
    VickieGelso's Avatar

    Bone Marrow Transplant

    Procedure or Surgery

    in July 2012, transplant was done. It was the last hope for a cure, and the only cure! It was the most difficult time of my life, w...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. almost 8 years ago
    VickieGelso's Avatar

    Remission

    Milestones

    Currently I am in remission, (Oct 2013) with no signs of disease present in bone marrow. I am 100% donor cells now...there are stil...

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    0 Comments
  9. almost 8 years ago
    VickieGelso's Avatar

    GVHD of gut

    Oh No

    In January of 2013, I had a GVHD episode for the intestines...I was in the hospital for 2 weeks, treating diarrhea, nausea, abd pain...

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    1 Comment
  10. over 7 years ago
    VickieGelso's Avatar

    Milestones

    In remission as of a few months now, and at Dr. appt on the 31st, many of my isolation restrictions have been lifted...I can now go ...

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    1 Comment
  11. about 8 years ago
    SurvivorAZ's Avatar
    • Survivor:
      Non-Hodgkin Lymphoma (NHL) 4 Experiences
    • Survivor:
      Myelodysplastic Syndrome (MDS) 1 Experience
    • Survivor:
      Skin Cancer - Non-Melanoma Squamous Cell Carcinoma, Skin Cancer - Non-Melanoma 0 Experiences
    • SurvivorAZ
    • Experience with Myelodysplastic Syn...
    over 5 years ago
    SurvivorAZ's Avatar

    Removal of port due to an nifection

    Procedure or Surgery

    My port became infected about 2 months ago. My doctor tried massive doses of antibiotics but they didn't work. So off to the surgeo...

    Read More

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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