- 2HighballAir
- Champlin, MN
- Member Since Jul 2012
Their Diagnoses (1)
-
- Spouse/Partner: Peripheral T-Cell Lymphoma, Unspecified
- Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 10 years ago, Male, Age: 70
- View this journey (4 Experiences)
Their Links
-
2HighballAir wrote on po18guy's wall
Thanks to you and the others who have posted on your wall. Sorry I've not responded. I realized that each person's T-cell lymphoma is different and trusted our oncologist. But with all that has been done so far, including a stem cell transplant with his own cells, there are still some cancer in the bone marrow. We see our oncologist in 2 days and will be given sme ideas of next steps.
I do know there is ALK- and that there are very rare CD4 cells lacking CD3 and CD7 among other things.
Last but not least, I'm wondering how I'd contact MD Anderson and in which part of U of WA he is located. I suppose I should also find out who Bashiem sees at U of MN.
Were you an Viet Nam vet? Thanks for all your help to others. Guess I should write more often. 2HighballAir
-
2HighballAir shared an experience
Side Effects (Taste change/loss): Food started to taste yucky after the 2nd chemo and has gotten worse with each suceeding chemo treatment. Am trying the Peanut Butter snack spread as well as Protein-fortified milk since I've starte loosing weight.
almost 10 years ago -
2HighballAir shared an experience
Side Effects (Fatigue (tiredness)): Tired so sleep during the day and I feel that it is OK at this stage of the treatment
almost 10 years ago -
2HighballAir shared an experience
Drug or Chemo Therapy (CHOP): Tired, most food tastes horrible, can still exercise, can still do many things, no nausea
almost 10 years ago