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    2ndtimearound shared an experience

    Celebration (1st CT scan 4 months after chemo was clear!): So far so good.

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    • mhawkins50's Avatar
      mhawkins50

      Hello. I was diagnosed with Stage 1 SSC 10 months ago. I opted NOT to do the surgery and just have an endoscopic mucosal resection. The Oncologist recommended the Esophagectomy, but I was worried about that big surgery and the bad side effects. My PET scan and all the EUS/EGD's confirmed no lymph node involvement and a very superficial lesion. Now I'm worried after hearing about your case! Did you have an EUS (Endoscopic ultrasound)?

      about 3 years ago
  • 2ndtimearound's Avatar

    2ndtimearound shared an experience

    Side Effects (Nerve damage (peripheral neuropathy)): Lots of side effects continued after chemotherapy stopped & lasted for about 6 months. Neuropathy, fatique & general malaise, irritable bowel syndrome. Medication given for neuropathy has helped. Must now really pay attention to what I have eaten if I have an IBS attack.

  • 2ndtimearound's Avatar

    2ndtimearound shared an experience

    Drug or Chemo Therapy: The first two months (4 doses) went well. Then the trouble started. I got diverticulitis. Treatment for that & recovery set us back on chemo treatment. Intestines were extra sensitive after that & my blood counts were frequently low. I ended up taking 8 months (instead of 6) to complete 10 out of the 12 treatments prescribed. By that time, I did start having signs of neuropathy, particularly in my right hand. I'm sure that occurred because of the loss of lymph nodes from my breast surgery 30 years ago.

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    2ndtimearound shared an experience

    Decision Point (What treatment to pursue upon finding lymph nodes with cancer cells): Apparently, my case was very unusual. Treatment after surgery is iffy. Finding lymph node involvement was a surprise to every one. So now my chances of survival are much less. My oncologist took my case to the hospital tumor board to get authorization for the use of an alternative chemo drug. They settled on using Oxiplatin for a six month period or for as long as my system could take it without having neuropathy side effects. I agreed to try the treatment.

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    2ndtimearound shared an experience

    Side Effects (Weight loss): The biggest difficulty was trying to eat enough calories to get off the feeding tube. I experienced "dumping syndrom" & a lot of times felt bloated. To complicate matters, the feeding tube plugged up by the end of the first month. It was too close to the surgery to replace it, so the doctor asked me to try to consume at least 1200 calories a day for the next week. If I could do it, he wouldn't have to replace the tube. He could just remove it. It was uncomfortable, but I was able to accomplish the task. It turned out to be a good thing as it helped me get started on chemotherapy sooner. It turned out that lymph nodes were involved after all.

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    2ndtimearound shared an experience

    Procedure or Surgery (Surgery): Met with surgeon a 2nd time before surgery. As I had done some research on the internet, I asked the Dr if he could do part of the surgery laprascopically. He said he thought so & that he might even see better with cameras. He answered all my questions, walked me through what would happen & assured me that he would have minimal discomfort after, but would have a two week stay in the hospital. Surgery lasted 3.5 hours and the laprascopic incision was made through the scar from my breast cancer surgery. I had very little pain because of the effiicient use of drugs, but was off heavy drugs by day 7. Post surgery exam of tissue did find lymph node involvement. Big dissapointment!!! Was released from hospital on day 10. Dr. was very pleased with my recovery from the surgery. Went home with feeding tube.