- 63stratman
- Blanchard, OK
- Member Since Sep 2012
Their Diagnoses (1)
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- Survivor: Acinic Cell Carcinoma
- Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 13 years ago, Male, Age: 71, Stage II
- View this journey (6 Experiences)
Their Links
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63stratman wrote on BarbaraAdele's wall
Barbara, that "redacted" phone number can be found at http://www.oumedicine.com/home/find-a-doctor/physician/-in-Specialties/Specialties/ear-nose-and-throat-(otolaryngology). From there, you can find Dr. Medina.
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63stratman wrote on BarbaraAdele's wall
Interesting. Looks like the filter XXX'd out Dr. Medina's first name -- which was Mary's only son.
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63stratman wrote on BarbaraAdele's wall
Hi. Barbara. I'm sorry to hear the problems you've had with doctors. Seems like an all-to-common story. My surgeon was Jesus Medina in Oklahoma City. I was a little surprised to find one of the foremost ACC surgeons in OKC, but that's where he was. He was head of Oklahoma University's otorhinolaryngology department, but he's semi-retired nows. He still lectures, but I'm not sure if he's accepting new patients. You can call[phone number redacted] to find out. I did not have chemo, just IMRT. I assume you've been to http://www.aciniccell.org/overview.html, where there is a lot of info. Just FYI, if mine recurs, and I no longer have Dr. Medina, I plan to go to M.D. Anderson in Texas. Good wishes and best of luck.
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63stratman shared an experience
Celebration (Anniversary): Approaching the 5-year mark and the cancer has not returned.
over 8 years ago -
63stratman shared an experience
Decision Point (Follow up CTs and PETs): I have followed my surgeon's recommendation for yearly full-body CTs and PET scans. However, there are mixed opinions about this in the medical community. Being such a slow-growing cancer, many specialists do not recommend PET scans. Also, the amount of radiation recieved by yearly CTs and PET scans is worrisome. But, partly due to the extensive experience of my surgeon, I followed his recommendation and had them.
over 8 years ago