My husband is 62 years old and this all started with a pain in his thigh. Long story short, they found a lesion which turned out to be a metastatic adenocarcinoma of unknown primary. He underwent surgery to stabilize the left femur, then after meeting with an oncologist, a PET/CT scan to try and locate the primary site. Results of PET/CT apparently failed to reveal primary source and he is now scheduled to undergo EDG/colonoscopy this week as testing of the biopsy material was positive for CDX2 which we were told was in favor of GI source.
This is all very confusing since he has no other symptoms other than skeletal pain and his blood count and chemistry have all been normal, outside of a slightly elevated CEA (but biopsy material was negative for CEA reaction) . I'm worried since this has been going on for over a month since we found the lesion and he is not undergoing any treatment yet other than the stabilization of his femur and pain medications.
Where is your FIL being treated? We are going to try and get an appointment at MD Anderson Cancer Center in Houston once he completes the EGD/Colonoscopy this week (I spoke with them already and they recommended going through with this testing first). My concern is that without locating the primary source that this is difficult to treat.
Any other information about your experience you can offer would be welcome. Thanks,