• aatkinson's Avatar

    aatkinson started following

  • aatkinson's Avatar

    aatkinson wrote on Zzchap's wall

    I am so sorry for your loss, you are in my prayers.

  • aatkinson's Avatar

    aatkinson wrote on jdcarolina's wall

    jdcarolina is my mother, I am there 37 year old daughter living at home, I never imagined that I would be going through this journey with mom or dad so early in life, I always thought it would be later in life when they were both retired and they would be living with me. It is definitely very challenging and my mother and I are both exhausted, we know dad loves us, but sometimes he can really hurt our feelings without even realizing he did it. It stinks that he has been in the hospital all week, but it has given us a chance to talk to each other some, because we do not talk in front of dad at home. Our lives are forever changed, the worst part for me right now is really wandering whats next, and there is such a long waiting period before the follow up pet scan to see if treatment worked or not, I mean if its gone great, we can breathe, but if its back or spread what in the world are we gonna do, My mother and I don't feel like we could handle a second go round with all we have been through this first time, and honestly I don't think dad could handle a second go round especially with a neck dissectioin, it would be horrible. I pray every night for strength for me and my mother, dad will be coming home today or tomorrow probably and we have to get back in routine. My mother is my best friend and I don't know what I would do without her, I am glad we are in this fight together. I just want things to be normal again although I know they never will be, but I will always be daddys little girl no matter how old I get and can only pray that he gets better and we can enjoy the time we have left together as a survivor and not fighting constant battles. I would say my mother has more strength than I do for dealing with dad, as she has been married to him for 40 years . It is very painful for me to see dad hurt and it is equally painful for me to see mom hurting physically and emotionally as well and there is nothing I can do. We are putting everything we have into this and have reached our limit. Mom called a few minutes ago and said his potassium and magnesium are low and he has to get meds and new blood work to see if he will be able to come home or not.. go figure just our luck, we were hoping to bring him home today and see the nurse for his IV antibiotics at home, but our bad luck track record for being able to come home from the hospital in a timely fashion has struck again. When dad had his tonsil removed in Feb. I started keeping a cancer journey diary, at the time we knew nothing about this site and for me it was a way to talk or vent, I thought it would help and it does a little, but not much it is worth a try it may help others who have no one to talk to. Well enough venting for now. Thanks for listening .

    1 Comment
    • Zzchap's Avatar
      Zzchap

      How wonderful that you are able to help your mother. I have two sons who are 33 and 35. They are not married and don't live close by. We are raising out three granddaughters....they have been my saving grace. When a day is horrible, their silliness can make me smile! Greg has the same issues with potassium and magnesium levels being low....makes him twitch constantly. He's on a magnesium supplement that has helped some.

      over 4 years ago
  • aatkinson's Avatar

    aatkinson started following

    User: jdcarolina

  • aatkinson's Avatar

    aatkinson started following

    User: GregP_WN