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    Abendintheroad asked a questionBreast Cancer

    Triple Negative recurrance

    7 answers
    • fiddler's Avatar
      fiddler

      As you probably already know, TNBC is unlike any other BC. The 1st 2 years post-treatment are the scariest because that's when it recurs the most often. The next scariest is the 5 year mark - if a TNBC survivor makes that, there's a 78% chance of survival. then there's the 10 year mark.

      A breast cancer researcher told me that TNBC recurrence is the opposite of all other cancers. Whereas all other BCs have a higher rate of recurrence the longer they go, with TNBC it's the opposite - the longer you survive the less chance of recurrence.

      That said, my onco doc said TNBC most often recurs in the liver, lungs and brain, but it can metastasize anywhere, and he said that it RARELY comes back in the same breast, but if it comes back it can come back in the other breast.

      Vanderbilt U. researched TNBC and suggested 2 things: it is ovarian cancer cells that wandered off (my words); there are 2 types - a type that never comes back and a type that comes back within 2-5 years.

      Because TNBC is not hormone dependent, no hormones are used to treat it.

      Be vigilant; do your breast exams and get the mammos on time. Well, and listen to your intuition - had I not listened to an inner voice screaming "Get a mammogram!" I wouldn't be here. Then the radiologist decided I had a "false negative" result and she was right.

      God/Creator/Source/guardian angel will lead you to where you need to go. "All" you need to do is listen and act on it without second thoughts.

      14 days ago
    • fiddler's Avatar
      fiddler

      Also, look for pain in the hip - mets of the bone....

      14 days ago
    • fiddler's Avatar
      fiddler

      And good luck, best wishes for longevity.

      14 days ago
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    Abendintheroad shared an experience

    Celebration (Anniversary): 3 years cancer free but I worry constantly about it coming back somewhere else and that we don't find it until it's too late. Iwas told that they'd be checking me every three months but it has only been every 6 months and that makes me nervous. I am getting an infusion of Zometa at each appointment to keep it from going into my bones but I still worry about it going somewhere else.

    3 Comments
    • Kp2018's Avatar
      Kp2018

      Congratulations on reaching your 3 year milestone! I have TNBC too and have 5 months to go before I get to my 3 year mark. I'm looking forward to it!

      The worry about recurrence never goes away for me as well, but I understand that most recurrences happen during the first few years after diagnosis. The farther you get out from diagnosis, the lower the risk of recurrence becomes. So, at 3 years, you're not worry-free, but your risk is going down with each passing day.

      I "graduated" to 6 month check ups this year, from the 3 month interval during the first year. One of the most important reasons for the check ups is to see if you're having any long term adverse effects from treatment. Thus, the closer you are to having had treatment, the more check ups.

      Also, the farther out you are from diagnosis, the lower the risk for recurrence. Hence, follow ups are spaced farther apart.

      My team encourages me to be vigilant for any possible signs of recurrence, not only in the breasts, but especially in the brain, lungs or liver. So, in a way, I'm always doing my own check ups. Here's a good reference for signs of possible recurrence. https://www.lbbc.org/learn/living-breast-cancer/signs-recurrence

      I'd be the last person to ever advise you not to worry about recurrence, but I'd be the first person to encourage you to celebrate your 3 year milestone and to have heartfelt gratitude that you've made it!

      about 1 month ago
    • Abendintheroad's Avatar
      Abendintheroad

      Thank you for the link and encouragement! I'm not usually a worrier but it seems like I keep hearing about other people whose cancer has returned and it's always on my mind

      19 days ago
    • fiddler's Avatar
      fiddler

      Congrats and keep up the good work!

      If you have a headset, start this music and put one ear piece on each side of your torso, then crank it up to full blast and relax while it plays. It's called "diurnal beats" and is the next great thing for cancer treatment - being researched like crazy.

      https://www.youtube.com/watch?v=ge6aQqhyopk&list=PLRQC-gSAVPLTE16HBxP1dli-GZTq70i2F&index=2

      I can't attest to cancer, but I had a dull throb in the area between my left kidney and hip. I did this for 2 days in a row. Next thing I know, a few days later my urine was root beer brown. At the appointment time, 3 days later, I took a sample and there was sediment at the bottom, like large salt crystals, only they were purple. The doc and I think kidney stones were broken up with the vibrations. A week later I learned that's how they break up kidney stones - vibration.

      Nothing in the universe is solid, and what we think is solid, like a keyboard, is mostly space! Quantum physics. It all makes logical sense.

      14 days ago
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