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    Decision Point (Scan sooner than planned, with likely surgery): Last scan (9/2018) showed tumor growth. We'll rescan in January, and I'm tentatively scheduled for more surgery in February. Likelihood of surgery - about 95%

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    abrub wrote on Patkinson's wall

    I was diagnosed with mucinous adenocarcinoma of the appendix in 2007, and am still doing well (tho I'll be having a new tumor removed in February.) I was clear for 9 years after major surgery with intraperitoneal chemo. I hope you are going to an Appendix Cancer specialist. Let me know if I can help.

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      Patkinson

      You give me hope that I’m not going through all this for nothing! I am seeing a specialist at the Huntsmans cancer institute. I also have a specialist that will be doing the HIPEC surgery. But it Is still so scary thinking of all I need to go through. But I have wonderful family and work supports and that helps so much !

      3 months ago
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      abrub

      It is scary, but doable. I know that there are some people who went to Huntsmans in the Appendix Cancer FB group. It's a private group, where no one but members can see what has been written. I'm an admin, and will add you if I see your request. (Just answer the required questions, or mention "abrub" and I'll know it's you.) My dear friend from HS just had the surgery (a few weeks ago) - was out of the hospital in a week. Recovery isn't easy, but she's doing pretty well. Or ask GregP_WN for my email address. You may contact me directly.

      3 months ago
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